Responses to NEW MOBILITY’s May cover package, “Life in the Time of COVID-19,” from Newmobility.com:
I just want to thank you all for all the great stories. It’s nice to read something and no longer feel alone. I’m a T4 paraplegic, and I’ve been hospitalized three times during this COVID-19 pandemic, which was one of my biggest fears. There was sort of this relief or calming feeling, as I read each story and found a connection in some form or fashion.
Y’all are awesome.
What a blessing to have people share their personal stories. I felt a sense of connectivity with all your stories. Because of our individual situations in learning acceptance, patience, adapting to the new, etc., I strongly believe we have a better understanding of what the world is going through. We have an abundance of resources and online services compared to 31 years ago when I became a T7 paraplegic and a mother of a gorgeous baby boy. Life is different right now, but I know we all have a powerful strength within ourselves that will help us fight through this. Keep safe everyone, and enjoy life one day at a time.
Thank you for sharing. I love that this unites us. I am in Bluffton, South Carolina, and I’m a T7 paraplegic. I was supposed to have surgery on March 31 to remove Harrington rods that had been stabilizing my spine for the last 30 years. I decided to delay the surgery. Luckily, I do not feel the pain of the rod, but it is doing damage.
I think back 30 years ago, and this incident would have been devastating to me and a lot of people in the Women’s Wheelchair network. Today it is difficult, but advice, resources and support abound. This helped me out today. I was feeling a little low.
These people, who are probably the tip of the iceberg, are an inspiration to us all. All the very best for your continuing journey and health.
I have such respect for the writers and the people written about in this excellent article. Wishing you all “medical establishment” improvements, new joys and necessary supports as we move beyond the current impacts of COVID-19.
Nan Abernathy Moss
OMG! These are all remarkable works — technically and thematically (“Art in the Time of COVID-19,” May 2020). As a writer, I am not usually at a loss for words, but I am now. I am going to have to come back and sit with them and hope I find the right words to express my feelings.
It isn’t easy to care for someone at home under the best of circumstances (“Caring for Your Parents From a Wheelchair,” May 2020). The doc sent my mom home with me after treating her for a fall (no broken bones) at the ER. Then, I had to find a way to get her into the house. Not easy to do when the caregiver (me) is someone in a wheelchair and her best friend is a tiny woman. Then, we took care of her until a UTI sent her back to the hospital … followed by rehab admittance three days later (Medicare rules). I was exhausted and sad that I couldn’t help her at home. She died a few months later from pneumonia. I am just glad she isn’t here now dying from coronavirus. I did the very best I could, as have others … being a caregiver is never an easy thing.
Just came from the hospital for a non-COVID-19 related pressure sore issue. It truly was a nightmare, and you described well the situation with doctors and nurses coming from treating COVID-19 patients standing over me breathing, talking, etc. (“Should I Stay Or Should I Go?” May 2020). Many of the nurses seem to be backups.
Hospitalizations are times when it becomes necessary to tune out and feel numb. I had the distinct experience of spending four days in this zone, then being sent home and called back for another five days due to an infection I probably acquired at the hospital.
Coping with such a lack of control is challenging. I don’t want to dwell on the helplessness but, psychologically, I fear not dealing with it could be harmful.