Advocate of the Year: Finn Bullers

On Christmas Eve 2013, Finn Bullers’ case manager knocked on his door and informed him that KanCare, Kansas’ new managed care program, had reversed its decision to limit him to 40 hours of care a week and had reinstated his around-the-clock care. For Bullers, who has Charcot-Marie-Tooth, a form of muscular dystrophy, the news was a chance to keep living his life and avoid a nursing home.

KanCare’s reversal didn’t happen because of an abundance of holiday cheer, it happened because Bullers, 49, led a relentless campaign to expose the hypocrisy behind KanCare’s decision. He has brought the same tenacious approach to a number of other key advocacy issues, including the battle to preserve access to complex rehab technology, the fight to ratify the Convention on the Rights of People with Disabilities and more.

In honor of all of his advocacy efforts anfinn Capitol Hill, legislative and policy conference in Washington, D.C., June 22-25, 2014.

“Finn deserves to be recognized with United Spinal’s Advocate of the Year 2014 award for all his years of effective advocacy, not only in his own state of Kansas,