A few weeks ago I wrote about a friend with osteogenesis imperfecta — or brittle bone disease — who went to the ER after breaking her arm at work. She’s had hundreds of fractures over the years, and this latest was a bone that had been broken and repaired surgically several years ago. She knows […]
Here is my troubled body, dreaming myself into life: a guttering candle in a mound of melted wax, or a bruised pear, ripe beyond palatability, ready for …
The jury is responding not only to my words, but also to my visible persona — to the tiny woman in a wheelchair …
What’s wrong with assisted suicide?” my friends asked. “If people want to die, who are we to stop them?”
Three years ago, while having a conversation with a dear friend who I met during a personal development seminar, I blurted out the words, “I’m not my story.” I said these words with conviction, power and assertion, and I knew there was truth to them. It was the type of truth that feels oh, so […]
Countless times I’ve been urged to take an adaptive yoga class to reduce stress and, hopefully, be healthier. But meditation and yoga poses never interested me until I heard about Laughter Yoga at the recent Abilities Expo at the New Jersey Convention & Expo Center. Laughter Yoga, really? Beth Bongar, who calls herself the Laughing […]
What happens if a doctor refuses to treat you? That happened to a friend, a wheelchair user with osteogenesis imperfecta (or brittle bone disease). My friend, like others with OI, has had countless bone fractures. Recently, she broke her arm as she was reaching for a pencil while working with a group of young students […]
The inner beast feeds on the carcass of hope. When hope dies, resentment floods in on the heels of depression and wastes no time in evolving into full-blown anger, even, at times, rage.
There’s this guy in his late-model gray Mercedes parked in the Accessible Parking Space. He doesn’t have a sticker or anything, he’s just in a hurry. So what I do is pull in right behind him, blocking his way out.
Living with a disability can bring rage in many forms: anger at being infantilized on telethons, at being looked upon as asexual or incompetent, at being tied to Welfare in order to receive medical care. So how do we deal with this anger?