What happens if a doctor refuses to treat you? That happened to a friend, a wheelchair user with osteogenesis imperfecta (or brittle bone disease). My friend, like others with OI, has had countless bone fractures. Recently, she broke her arm as she was reaching for a pencil while working with a group of young students […]
The inner beast feeds on the carcass of hope. When hope dies, resentment floods in on the heels of depression and wastes no time in evolving into full-blown anger, even, at times, rage.
There’s this guy in his late-model gray Mercedes parked in the Accessible Parking Space. He doesn’t have a sticker or anything, he’s just in a hurry. So what I do is pull in right behind him, blocking his way out.
Living with a disability can bring rage in many forms: anger at being infantilized on telethons, at being looked upon as asexual or incompetent, at being tied to Welfare in order to receive medical care. So how do we deal with this anger?
How Others See Us: Our Friend, Our Mom, Our Love
“I Got 99 Problems and Palsy is Just One,” “The Gorilla in my House” …
As I write this, the winds are blowing fiercely and the snow is piling up like icy sand dunes — just another winter’s day in the frigid northeastern U.S. Winter always seems like the longest season of the year but in 2014, it appears as if this extreme weather will never end. Since I work […]
I don’t think I’ve had a solid eight hours sleep in nine years. Sleep, that elusive minx, has evaded my life since my spinal cord was torn. I did snag one eight-hour night of sleep last July, but that was because I had just received the first round of bladder Botox injections of my life. […]
While the environmentalists and climate change deniers battle it out over why last week’s polar vortex happened, we folks with SCI or similar disabilities need to focus on how to survive frigid temperatures. It’s not easy staying warm when you’re rolling around in a wheelchair in dangerously low temperatures. In fact, it can be a […]
This time of year we’re bombarded with silly TV commercials trying to sell us even sillier gift ideas, ranging from Chia pets to underwear, potato chips and everything in between. This year, though, when I saw the ad for “the Clapper,” I thought, “hmm, that might actually be useful.” Wouldn’t it be a kick to […]