I Have MS but I Don't Have CRABs!Jun 30 04:30
I’m going to gripe about something here that, probably, I should be grateful for -- all the supposedly wonderful breakthroughs in treatments for multiple sclerosis. Specifically, the CRAB meds that theoretically keep MS at bay. “CRAB” is the ironically accurate acronym for the “big four” MS drugs that researchers think alter the natural course of MS: Copaxone, Rebif, Avonex and Betaseron.
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1. tysabrigirl | Jun 30 10:33
I too have failed on all of the CRAB's meds and am now on Tysabri. I look at it as a relaxing was to spend 2 hours by myself. Try and remember that attitude is 90% of the battle. FInd something that you enjoy doing and do it. Like I tell people all the time, I have MS but it doesn't have me! Diagnosed June 1994. I refuse to lose!
2. cw.francis | Jun 30 11:53
You mentioned that you "still get symptom and they still eventually go away." That great. For me, I was diagnosed in late August, 1997 3 months after I could no longer walk. I was told that within 6 months I would never get out of bed again. I choose to go on Betaseron. I used it for over 7 years. I was to start Tysabri two days after it was pulled off the market. I spent a year on Rebif and I am finally on Tysabri. Tysabri treatment has been the best for me. I can now flex my right angle for the first time in 4 years and transfers are easier. Remember MS is not the common cold. Letting it run its course is NOT a good idea.
3. cw.francis | Jun 30 11:19
I have read a lot of hogwash in my days but yours tops all that I can remember. If you wish to risk you life, as you know it today, that's fine. But to spread your twisted view of the facts is irresponsible. First the human body produces interferon. Dr. Yasuhiko Kojima discovered interferon in 1954. He found that interferon helps protects the bodies immune system. He also found that people with weakened immune systems produced less interferon.
4. cw.francis | Jun 30 11:20
Of the ABCR drugs, three are interferon based. Avonex and Rebif are based on interferon-1a and Betaseron on interferon-1b. The 1a and 1b signify how closely the interferon matches the body's natural interferon. Interferon-1a is a closer match than is interferon-1b. Yes most people will experience flu like symptoms. However, for most people the flu like symptoms taper off and end within a flew months.
5. cw.francis | Jun 30 11:20
You imply people should not take one of the ABCR drug until after "their very next huge exacerbation." You say the ABCR drugs are not like "baby aspirin." That true, however aspirin can cause ulcers, decreased blood platelets and white blood cells, and even life threatening allergic reactions. Not taking one of the ABCR drugs is like playing Russian Roulette with all but one chamber loaded. Blogs like yours do more harm than good