Michele Obama About her Dad, who had MSAug 26 09:59
Thanks to ADAPT organizer and activist extraordinaire Mark Johnson, here's a snippet of Michele Obama's speech last night, where she talks about her father's MS and her husband’s candidacy for president. The edit is Johnson's:
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1. Vast | Aug 26 12:22
Funny, I've always been a realist and enjoyed living in the world as it is rather than having a dream about how it should be. Should be for who? I knew if I worked hard, I could acheive my personal goals rather than expect society to provide things for me. I've had M.S. for 30+ years and am still working for myself and my family.
2. eb | Aug 26 11:38
I remember watching Obama speak about community organizing and advocacy in the disability community well before he was running for president. He also participated in a video for the National MS Society talking about advocacy that local chapters played before we participated in citizen lobby days at our state legislature. I just found the video posted on you tube (it's 7:29 minutes but worth it). Please listen to Obama in his own words at: http://www.youtube.com/watch?v=6VB90yV17f0
3. Sec | Aug 26 05:10
You know Vast, I think you took what Mrs. Obama way out of context. And perhaps you have been able to enjoy the real world "as it is" but for some people that isn't nor should it be acceptable. I too live with MS and it's a struggle each day. Do I get up and keep going..I sure do, everyday, and do I want more and expect more out of life? I sure do...and I know with my continued hard work I can achieve it. And I think that's all she's saying here. I don't believe she mentioned anywhere that she expected society to take care of her Dad...rather she emphasized that even with failing health, he continued to work hard, never complaining. And as a person with MS, we of all people should know that this disease comes in all sizes, shapes and colors..effecting each of us in different ways. Some of us with MS wish and hope that we might have the ability to get up each day to go to work and take care of our families. For some its not an option.
4. Beverly(Harry) Bartolomei | Sep 29 12:02
I want to stop the progress of my Progressive MS. I want to talk with researchers and share my story. Movie;Extraordinary Measures-I want to work to cure MS. After working for 2 years with the windows open in a spagetti-strap t-shirt to stay winter, in the cold to move with my co-workers in ski jackets with heaters on their feet, they made me apply for Disability. Who is doing reseach in USA? I am not bedridden yet, but wheelchair, no walk, no fingertip grip, the colder the better, no drugs available for progressive ms, can only move hands short time. I WANT to get involved with MS reseach and find a cure, please