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Tremors of Intent
MS Cooling Tips
Since June, my part of Pennsylvania’s been hit with one heat wave after another, all the way to August, when it’s just generally HOT. For us, a heat wave means temps in the high ‘90s for more than a few days, and we broke 100 quite often. Also, on top of the heat, we typically have very high humidity.
20th Anniversary of ADA Reflection
This is from my friend, Joelle Brouner, who posted it as a note on Facebook. She’s the executive director of the State of Washington’s Rehab Council, and also is a woman with CP. Enjoy, and please feel free to add your own.
Community Choice Act: Recession Proof
From Arnieville out on the West Coast to lawsuits battling Medicaid cuts in Colorado, it’s clear the recession is far from over when it comes to services people with
Very Special Glee Episode
So, what did you think of last night’s Glee episode, featuring real-life quadriplegic Zack Weinstein? Glee follows a high school glee club, and features a diverse cast of students ranging from Asian to gay to Jewish to wheelchair user. It’s a musical show, and at any time someone might just burst into song. The show often
Hope, Love, Trust and ADAPT
Here’s a shout out to all the ADAPTers in Washington, D.C., this week marching in the chilly rain and taking on our nation’s powers-that-be.
ADA: A Personal Reminiscence
Today is Monday, April 26, 2010, three months away from the 20th anniversary of our civil rights law, the Americans with Disabilities Act.
ADA Celebration, New Mobility Style
Our civil rights law turns 20 this July 26 and we’re celebrating New Mobility style. What’s that mean? Well, it means we’re going to ask a whole bunch of experts to tell us how the ADA has affected them personally over the years, and the positive ways our society’s attitudes have changed toward those of us with disabilities. Also, we’ll also ask these experts for stories about how, perhaps, times haven’t been a’changin’ as much as we’d like.
I Choose to Be Me
I’m writing this blog entry from a small art studio – art shed, actually – on Herrbrook Farm, located in the center of Pennsylvania Dutch country in Lancaster County. Herrbrook Farm is owned by a Mennonite family that sets aside a few buildings for people who need space to create or rejuvenate or, as in my case, both. The art shed’s next door to the “retreat cottage,” which is heated by a wood burning stove. I woke up about three times last night to the sound of popping wood and fire-fueled dancing shadows. It’s a little bit scary and awfully
ADAPT's Marsha Katz Weighs In
Marsha Katz, who wrote the following entry, is best known as ADAPT's spokesperson.
The Employment Advocacy Debate Continues
Following is a comment by Cripchick passionately disagreeing with my employment entry that I found on Laura Hershey’s site. All I know about Cripchick is what I’ve read on her blog. She has interesting opinions backed by a strong voice and I look forward to hearing more from her.
More Thoughts on Poverty, Employment
Hi Laura,
Debating Advocacy Priorities
This response by Laura Hershey, one of our movement's foundational thinkers, is too good not to share:
Eggheady Thoughts on Employment
By now you’ve probably seen the funny Think Beyond the Label commercial that encourages businesses to hire people with disabilities. If not, you can watch the commercial here, and read an excellent New York Times article about the campaign here.
Relief for Haitians with Disabilities
Paul Timmons, board chair of the disaster-relief group Portlight Strategies, says there’s a good reason his group focuses on people with disabilities. “It’s a screaming need,” says Timmons, who has a physical disability himself. “The large relief providers, almost without exception, don’t even have us on their radar, much less in their sights. Things as simple as shelter accessibility get overlooked.” And don’t get him started on FEMA.
Swine Flu, MS and Vaccines
“I am Lazarus, come from the dead,
Health Care Reform: Shhh ... Let it Cook
Within the disability community, we’re all being very quiet and polite right now about health care reform. I don’t know if you noticed, but there haven’t been any big action alerts, rallies or even publicized meetings among our activists about the issue in quite a while.
Thoughts on Compost
I’ve been thinking lately about compost.
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I'm sarcastic as hell, have an egg-head streak a mile wide and have called the disability community my home since 1990, when I got a job answering phones at the Pittsburgh Center for Independent Living. Since then I've been an advocate, activist, thinker and — above all else — a writer on all things disability related. I knew since the '80s I had something going on with my body, but didn't get diagnosed with MS until 1998 when I finally had a relapse severe enough to be measured and weighed by doctors. I currently live in Pennsylvania's state capitol with my partner and our little hound dog.