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Tremors of Intent

Debating Advocacy Priorities

This response by Laura Hershey, one of our movement's foundational thinkers, is too good not to share:

Debating Advocacy Priorities: Free the Oppressed, or Promote Employment?

By Laura Hershey

Always willing to challenge the disability rights movement with provocative ideas, my friend Josie Byzek has now written a column calling on our advocacy movement to make employment a top priority. It

Read More | 3 Comments | Feb 04 01:42

Eggheady Thoughts on Employment

By now you’ve probably seen the funny Think Beyond the Label commercial that encourages businesses to hire people with disabilities. If not, you can watch the commercial here, and read an excellent New York Times article about the campaign here.

This campaign focuses on an issue that – strangely – isn’t a high

Read More | 2 Comments | Feb 03 10:51

Relief for Haitians with Disabilities

Paul Timmons, board chair of the disaster-relief group Portlight Strategies, says there’s a good reason his group focuses on people with disabilities. “It’s a screaming need,” says Timmons, who has a physical disability himself. “The large relief providers, almost without exception, don’t even have us on their radar, much less in their sights. Things as simple as shelter accessibility get overlooked.” And don’t get him started on FEMA.

Read More | 1 Comments | Jan 19 11:48

Swine Flu, MS and Vaccines

“I am Lazarus, come from the dead,

Come back to tell you all, I shall tell you all”

— T.S. Eliot, in “The Love Song of J. Alfred Prufrock


Obviously I haven’t yet actually died from swine flu, although a few times I have begged God to just kill me. A bit melodramatic, to be sure. But now that I think I truly am finally recovering, I feel a kinship with Lazarus.

The flu means fever, and fevers with MS are terrifying. I’ve been through enough to have a plan: Basically, I don’t let ibuprofen out of my

Read More | 0 Comments | Dec 15 12:32

Health Care Reform: Shhh ... Let it Cook

Within the disability community, we’re all being very quiet and polite right now about health care reform. I don’t know if you noticed, but there haven’t been any big action alerts, rallies or even publicized meetings among our activists about the issue in quite a while.

It’s like this whole process is a soufflé of sorts and we don’t want it to implode. Well, when I say “we,” I mean generally those of us who see ourselves as left of center, politically. Partisans on the right are jumping up and down and doing all they can to get

Read More | 4 Comments | Nov 24 10:15

Thoughts on Compost

I’ve been thinking lately about compost.

Gardening is brutal. To cultivate what we desire, we murder a lot of perfectly-fine plants. And most of us dispose of our victims’ bodies – the weeds, the saplings, the beautiful-but-unloved bushes – on a compost pile. Some folks do it right and mix in coffee grounds, egg shells and organic dinner left-overs. I suspect most are like me: We dump our clippings and then make sure they’re turned once or twice a season. The reward is richer soil and free mulch for our gardens. Every gardener knows what grows thrives

Read More | 2 Comments | Nov 05 03:53
 
Website Services: Degnan, Co.

Tremors of Intent

By Josie Byzek

I'm sarcastic as hell, have an egg-head streak a mile wide and have called the disability community my home since 1990, when I got a job answering phones at the Pittsburgh Center for Independent Living. Since then I've been an advocate, activist, thinker and -- above all else -- a writer on all things disability related. I knew since the '80s I had something going on with my body, but didn't get diagnosed with MS until 1998 when I finally had a relapse severe enough to be measured and weighed by doctors. I currently live in Pennsylvania Dutch country with my family and our four cats, three fish and two turtles.


More Posts
  • Debating Advocacy Priorities
  • Eggheady Thoughts on Employment
  • Relief for Haitians with Disabilities
  • Swine Flu, MS and Vaccines
  • Health Care Reform: Shhh ... Let it Cook
  • Thoughts on Compost
  • ADAPT's Marsha Katz Responds
  • ADAPT is Crazy
  • On Democracy
  • Hurricane Katrina: The Doctors' Choice
  • Power Wheelchairs and Health Care Reform
  • Yet Even More on Health Care
  • Health Care Update
  • Obama's ADA Speech Bombs
  • There is no Obama Health Care Plan
  • The Year of Community Living
  • Obama's Latest Disability Appointment
  • Obama Health Care Plan Details
  • Obama, Axelrod, Institutions ... uh oh
  • White House Questions and Conjecture
  • Stem Cells from Body Fat
  • Obama's Crip Problem
  • Paterson Spoof and Bloomie Blow-up
  • Navigating My Personal Energy Crisis
  • Understanding the Stim Package
  • Hey, Mr. President!
  • Dear Mark,
  • The Lewis Argument: Pity vs. Dignity
  • Time for a New Myth
  • Stop Humanitarian Award for Lewis
  • Let's Play ADA Mad Libs!
  • Accessible America Deadline is WEDNESDAY
  • Stocks Plummet as Tysabri Kills Again
  • Crime, Punishment and Quadriplegia
  • My Thanksgiving Gratitude List
  • WGAL Responds
  • Life, Death and Spinal Muscular Atrophy
  • Congratulations! Now get to work.
  • Goodbye, Sen. Rhoades
  • Political Thongs
  • ADA Amendments Act Silently Signed
  • Uber-Liberal Rep. Frank Arrests ADAPT
  • McCain/Palin Won't Budge on CCA
  • Some Lessons from 9/11
  • McCain and Palin, Bad News for Us
  • Michele Obama About her Dad, who had MS
  • Tropic Thunder is a Satire, Folks!
  • ADA Bill and Regs: What's the Diff?
  • McCain says No to Community Choice
  • Congratulate me on my new DORK VEST
  • Goodbye, Harriet
  • What Makes Crips so Tasty?
  • McCain has 40 ADAPT Activists Arrested
  • YES, I drank the Obama Kool-Ade!
  • Dear Hillary
  • Crip, Gimp and Other Naughty Words
  • Medical Lawsuits Gonna Get Harder
  • Barack Obama and Terri Schiavo
  • Justice! Florida Deputy Charged
  • Cop Dumps Quad from Wheelchair
  • We All Walk in Different Shoes
  • Fighting Back a Rogue Supreme Court
  • Funny Superbowl Ad in ASL
  • And Vying for the Disability Vote are...
  • New Ad Focuses on Candidate's Disability
  • The Candidates and Disability Issues
  • What Comes Next?
  • My Top 10 News Stories of 2007
  • Cartoon Characters with Disabilities
  • Personal Assistance and Turning 60
  • Stem Cells from Human Skin
  • Lights, Tints, and Equal Access
  • Deities and Disabilities
  • Goddesses, Freaks and Parasites
  • Strange but True Voting Tale
  • Damn You, Michael Gerson!
  • In Praise of Coffee
  • Flamethrowers, Family and Fatigue
  • Dying for Services
  • ADA Restoration: Help Pack the Room!
  • The Inevitable Nursing Home Bed
  • My Presidential Wish-List
  • Taking a Day Off on Account of Sun
  • Drug-related Injuries and Deaths
  • Oh, Sure, GLAAD Gets an Apology ...
  • The Quotable Jerry Lewis
  • Bring it on, U.S. Chamber of Commerce!
  • It's Time to Fix the ADA
  • Minneapolis' Marcelo Cruz and the Media
  • Voting: Talking with the Advocates
  • A Shout-Out to Rural Pennsylvania
  • An Accessible Voting Primer
  • Voting Machines: Access vs. Integrity?
  • I Have MS but I Don't Have CRABs!
  • More Thoughts on the Ashley Treatment
  • MiCASSA No Longer Exists
  • Red Machines, Blue Paper Trails
  • Baby-Free Stem Cells
  • Let the Crippled People Demonstrate
  • Ashley, Jack and CMS
  • Ask About the Sign
  • Don Imus, Slurs and Lame