JohnRPolito
Junior Member
Registered: 10/29/11
Posts: 9
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78.2 cents goes to us "kids" and the rest goes to keeping the offices open and the organization running.
I was a Firefighter before i developed Muscular Dystrophy myself i always worked on the "Fill the Boot for MDA" campaigns every year ,and as a Family thing we donated to MDA as well.
Then in 2004 i was diagnosed with ALS (that was wrong because i had two diseases appear at one time and together they mimic ALS perfectly) and i totally freaked and fired my Neurologist and got a better one who figured out the two disease thing and was able to prove it by having a genetic test done that they wanted a check guaranteeing payment for 25,000$ which had it not been for the MDA giving me a grant to pay for that i would never have known the truth about what i had.
The MDA is a great organization and it helps us "kids" from diagnosis till death .Even before my own "joining of the organization i respected it and now being on the "inside" all that much More.
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