#41587 - 08/15/06 08:56 PM
Re: Disability Pride Weekend Events
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SeaShelly
Member
Registered: 02/12/01
Posts: 1917
Loc: South Carolina
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I miss Xuxan...she and I TOTALLY DISAGREED about the sex toy thing LOL...but other than that she had a lot of positive energy to add to this board, and she seemed to be a genuinely kind person.
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#41588 - 08/15/06 09:00 PM
Re: Disability Pride Weekend Events
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rosio2
Member
Registered: 11/04/04
Posts: 47
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You mean, Susan that you are not really disabled but you are fat?
I feel duped - you serve on all these boards becuase yur adopted son has down syndrome? Did I miss something, I thoght you had CP or SB..I though you were legit..."you lied you lied...where is the pride????"
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#41589 - 08/15/06 09:08 PM
Re: Disability Pride Weekend Events
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joyt
Member
Registered: 04/16/01
Posts: 19345
Loc: AccessibleProperties.net
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Originally posted by rosio2:
You mean, Susan that you are not really disabled but you are fat?
I feel duped - you serve on all these boards becuase yur adopted son has down syndrome? Did I miss something, I thoght you had CP or SB..I though you were legit..."you lied you lied...where is the pride????"
yeah - shame on her - she adopted a ds child - grow up!
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#41590 - 08/15/06 09:09 PM
Re: Disability Pride Weekend Events
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joyt
Member
Registered: 04/16/01
Posts: 19345
Loc: AccessibleProperties.net
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Originally posted by SeaShelly:
I miss Xuxan...
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#41591 - 08/15/06 11:11 PM
Re: Disability Pride Weekend Events
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rosio2
Member
Registered: 11/04/04
Posts: 47
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Get a grip joy, as far as I can read from these posts, and I rarely follow Susan's threads, it seems she does not have a disablty but is fat. Fat is not a disability, if she does have a disability then what is it?
Is her championing people with disabilities because she has a son with down syndrome? Why is that deserving of your comment? Good for her she adopted a child with a disability, does it mean she is an expert now? I don't think so, what is her disability and why is she being seen as the knowing all of people with disabilities?
She has good information however she sounds like a religious fanatic shoving it owon our thorats what we need to believe around disability issues...so grow up yourself (just call me molly mature, back at ya, ya fool)
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#41593 - 08/16/06 02:04 AM
Re: Disability Pride Weekend Events
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ævory
Member
Registered: 04/04/05
Posts: 9657
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Originally posted by Xuxan:
All of you SHOULD come to the parade and maybe you would start seeing yourself in a different light. I readily admit, I look in the mirror and I hate what I see, but I don't hate who I am. The parade is not about celebrating how beautiful we are, but who we are - what we've accomplished and what we dream - and networking with people to make our dreams happen!
you should (this or that) because someone said you should? how far back does that should go? when did you first think it...hear it? when did it begin and why ....hearing another say you "should" is like trying to guilt someone into something..why would someone try to guilt or shame another into anything (whether it be good or bad)?
Maybe if I did what you say I should do I'd see myself in a different light? That doesn't sit well from my perspective. And you have no perspective on me. see how this gets you into trouble on a messageboard?
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#41594 - 08/16/06 02:41 AM
Re: Disability Pride Weekend Events
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jerseychick_dup1
Member
Registered: 01/21/05
Posts: 819
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Here's a link for those of you who are into disabled empowerment.
http://www.sexsupport.org/mother.html
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#41595 - 08/16/06 05:31 AM
Re: Disability Pride Weekend Events
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LASHB
Member
Registered: 05/28/03
Posts: 7213
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Originally posted by Xuxan:
I am sick and tired of all the assumptions you make about me without ever having met me. You are clueless as to what my medical history is or is not. You don't know a single person who has met me.
The stupidest thing I ever did was to admit on NM I was fat - or give out any info that would lead you to a photo of me. The fat prejudice you are allowed to exhibit on NM without anyone calling you on it is reprehensible.
Being fat has nothing to do with not being able to hear.
Being fat has nothing to do with having prosthetic implants in my leg, ankle, and foot.
Being fat has nothing to do with one leg shorter than the other.
Being fat might contribute to my sleep apnea, but since it preceeds my fatness and it runs in my family I doubt it.
Being fat probably contributes to the amount of back pain I have, but not all of it.
Being fat probably is the cause of my recently established diabetes which caused the neuropathy I was experiencing - which is thankfully now gone.
Being fat certainly contributes to the pain when I walk.
But being fat does not stop me from working 40-60 hours a week.
Being fat does not stop me from being sought out to do presentation all over the country on disability and sexuality issues.
Being fat has not prevented me from raising a severely disabled child to adulthood.
Being fat has not prevented me from becoming expert on disability access issues.
Being fat has not prevented me from having a long term quality relationship.
Being fat does not mean I am not also disabled.
Being fat does not mean I don't deserve respect.
Being fat does not mean I don't have feelings.
While Susan and I may not always agree on things, I like her. She has lots of good information and goes out of her way to help others. She will be missed here.
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#41598 - 08/16/06 08:40 AM
Re: Disability Pride Weekend Events
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joyt
Member
Registered: 04/16/01
Posts: 19345
Loc: AccessibleProperties.net
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Originally posted by Sylvana: Jerseychick, your link did not work for me. This one will get you to Susan's website. Susan\'s website
A mother\'s narrative: Reflections on life with disability.
When he was eighteen months old I fell and sustained compound fractures of my 4th and 5th lumbar vertebrae, and when he was six I shattered my ankle so severely amputation was under consideration.
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#41599 - 08/16/06 08:52 AM
Re: Disability Pride Weekend Events
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LASHB
Member
Registered: 05/28/03
Posts: 7213
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Joy, thank you. I had never read that article. Well written and very explanatory.
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#41601 - 08/16/06 12:20 PM
Re: Disability Pride Weekend Events
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jerseychick_dup1
Member
Registered: 01/21/05
Posts: 819
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Wops, I am sorry I posted the wrong link:
http://www.sexsupport.org/mother.htm
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#41602 - 08/16/06 12:27 PM
Re: Disability Pride Weekend Events
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jerseychick_dup1
Member
Registered: 01/21/05
Posts: 819
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Originally posted by Sylvana:
Sylvana[/QB][/QUOTE]
Apology accepted
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#41603 - 08/16/06 12:37 PM
Re: Disability Pride Weekend Events
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LASHB
Member
Registered: 05/28/03
Posts: 7213
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Jersey, I got page not found when I clicked your link.
edited to add the link is gone. I'm really not going crazy. 
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