#188881 - 07/10/10 08:15 PM
HELP~ raw skin....
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Lola
Member
Registered: 03/17/05
Posts: 5944
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( i posted this at carecure, but figured i might as well post it here to see if any of you can help or come out with some other ideas)
...around my rectal area this has been going on for like 2 weeks and it is so painful and discomfortable
hi, all,
i wear diapers and move my bowels around 3/4 am every morning. i am done around 5:30 when my beloved ma comes to clean me up. we never had problems like that.
the area is in the crack, between the two cheeks surrounding the rectal area. it is very irritated, red and with raw spots.
we have tried hydrocortisone, lanacane, and my doctor prescribed something called epi foam that i have started today.
any ideas on how to make this better?
it hurts so much.....
lola
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#188885 - 07/10/10 11:07 PM
Re: HELP~ raw skin....
[Re: Lola]
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Paul I
Member
Registered: 02/24/00
Posts: 7913
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Try one of the many skin protectors like skin prep. Then try getting a gauze pad and sticking it between to absorb moisture.
If it helps you will know the area wants to be dry.
Also, the pH of your feces may affect it. It's most likely acid if anything so washing with baking soda or hydrogen peroxide might help.
Edited by Paul I (07/10/10 11:09 PM)
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"...only the shadow knows"
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#189001 - 07/12/10 07:13 PM
Re: HELP~ raw skin....
[Re: Paul I]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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thank you for replying and for the ideas, paul 
i forgot to mention that my bowels are very spastic, so they irritate my bladder, making it leak, even though i have had botox injections.
every time i have a contraction to go, i leak through my urethra and i supoose that irritates the raw skin, too, and washes out everything i have put in it to prevent the poo from having contact with the raw skin......
i don't know what else to do....... i have thought about a colostomy.
anyone else has any input?
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#189013 - 07/12/10 08:28 PM
Re: HELP~ raw skin....
[Re: Lola]
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anita
Member
Registered: 03/17/09
Posts: 155
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Lola, if you haven't tried Desitin yet, you should try it.
Have your aide gently clean the irritated area with lukewarm water, then dry it with a soft tissue, by patting gently, never rubbing, because rubbing will irritate the skin more and make the problem worse.
Then let her apply a good, thick coating of Desitin to cover the irritated area completely.
Desitin contains natural oils that are very thick, so it will not get washed away by urine or feces, and it will protect your skin from irritation very effectively.
It also has vitamins A and D, and zinc, that will promote healing.
I hope it helps.
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#189087 - 07/14/10 05:39 AM
Re: HELP~ raw skin....
[Re: anita]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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hi, anita
thank you for replying.
desitin has helped me a lot when the rash has been on my cheek (butt) but somehow it is not adhering so well on the raw skin....
i love desitin, it is the first cream that my ma applies when i am getting a rash.
this raw skin is being a pain in the ass, literally!
thank you for the suggestion anyhow!
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#189111 - 07/14/10 11:40 AM
Re: HELP~ raw skin....
[Re: Lola]
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paradocs
Member
Registered: 11/20/04
Posts: 2323
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Have you changed laundry detergents or has the one you use been "reformulated?" If so, trying another might help. Try something mild like Ivory.
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#189115 - 07/14/10 12:16 PM
Re: HELP~ raw skin....
[Re: Lola]
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sweetqt
Member
Registered: 06/13/07
Posts: 709
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I am so sorry you have to go through all of this. I do not understand why people have to suffer, and it always seems to be the ones that are of the top people. Honey, if I could take away your pain, I would. You are a beautiful person and I am blessed to have come across someone like you, never mind the friendship that you have given me.
Always know that I am thinking of you and you are in my heart.
I hope you feel better soon.
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#189171 - 07/14/10 04:59 PM
Re: HELP~ raw skin....
[Re: sweetqt]
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corlorde
Member
Registered: 04/24/01
Posts: 9246
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deleted
Edited by corlorde (07/14/10 06:27 PM)
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#189198 - 07/14/10 06:24 PM
Re: HELP~ raw skin....
[Re: corlorde]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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thank you for the sweet post, michelle
corey.... not in my thread, please. if you have a bit of concern for me and my suffering which i think you have, you will take your problems with michelle elsewhere.
i need help and support.
thank you for the heads up on the detergent, paradocs. i will ask my friend to buy something like ivory.
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#189201 - 07/14/10 06:30 PM
Re: HELP~ raw skin....
[Re: Lola]
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corlorde
Member
Registered: 04/24/01
Posts: 9246
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You're right
I know there are not any easy answers for you, try to hang in there and pain sucks, this I know.
Edited by corlorde (07/14/10 06:32 PM)
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#189213 - 07/14/10 06:42 PM
Re: HELP~ raw skin....
[Re: corlorde]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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thank you corey. i knew you would understand
hope life is good for you!!
Edited by Lola (07/14/10 06:42 PM)
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#189224 - 07/14/10 08:46 PM
Re: HELP~ raw skin....
[Re: corlorde]
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anita
Member
Registered: 03/17/09
Posts: 155
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I'm sorry to hear that your skin is so raw that desitin does not adhere to it. But maybe another product, called Cavilon No-Sting Barrier Film could help you.
It's alcohol free, so it won't sting or damage sensitive tissues, and it's made especially to protect the skin of incontinent patients from damage due to urine or feces, and it can be applied even to raw or denuded skin. It is recommended for daily use by patients who wear diapers to prevent skin damage.
It comes in a small pump-spray bottle, and you spray it on the skin, starting around the anus and moving outward, and when it dries, it forms a waterproof protective film that lasts for at least a day.
They also make a Cavilon Skin Cleanser which is less irritating than soap and water, so it does not need to be rinsed off, and is recommended for routine skin cleaning of the diaper area.
Here is the manufacturer's page with information on the product: http://solutions.3m.com/wps/portal/3M/en_US/SH/SkinHealth/brands/cavilon/ (click on No Sting Barrier Film)
Here are the instructions for use: http://multimedia.3m.com/mws/mediawebserver?mwsId=66666UuZjcFSLXTtmXTELXf6EVuQEcuZgVs6EVs6E666666--
And here it is at Allegro medical: http://www.allegromedical.com/ostomy-supplies-c529/no-sting-barrier-film-28ml-spray-p175977.html
But, unfortunately, if your skin is very bad, and oozing a lot of fluid, then the Cavilon might not be able to adhere too well to the oozing areas, but it would still help protect the other areas that are not oozing, and keep them from getting worse.
Also, skin infections with Candida (yeast), or with bacteria, are very common in diaper dermatitis, and can make the problem worse, so you should ask your doctor if she thinks that this could have caused your problem to get worse in the last few weeks, because if you didn't have this type of painful irritation before, then something must have changed recently to cause it.
And if you don't get better in the next two weeks, you should consider seeing a wound care specialist, because if the skin on your butt continues to get worse, you could develop serious pressure ulcers, and you don't want that to happen.
Edited by anita (07/14/10 08:47 PM)
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#189232 - 07/15/10 08:44 AM
Re: HELP~ raw skin....
[Re: Lola]
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sweetqt
Member
Registered: 06/13/07
Posts: 709
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Your very welcome Lola. I knew you would understand.
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#189302 - 07/15/10 06:24 PM
Re: HELP~ raw skin....
[Re: sweetqt]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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wow, anita, thank you so much for taking tha time to post and offer your advice!! i appreciate that. i will buy the cream and let you know how it goes
michelle, thank you again for offering your support! i also appreciate that, my dear friend
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#189376 - 07/16/10 02:52 PM
Re: HELP~ raw skin....
[Re: anita]
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flicka
Member
Registered: 04/06/00
Posts: 24616
Loc: SLO County, CA - 66.122.77.142
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Also, skin infections with Candida (yeast), or with bacteria, are very common
I agree. Check out the pictures on the bottom of this page. They're pretty gross, but on the bottom, in the middle, is a picture that may represent what is happening to you. Have your ma look at them and see if this might be going on with you.
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"A lot of things were acceptable--until we stopped accepting it." -- Al Sharpton '12
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#189403 - 07/16/10 06:15 PM
Re: HELP~ raw skin....
[Re: flicka]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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right on, flicka. ma just looked at theicture and she says that the bottom middle one is me. wow, you are very resourceful!
now everyone can take a look at how my raw skin looks like. ( excpet that is doesn't till the vagina, it is on the rectal area ).
thank you so much!
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#189419 - 07/16/10 07:48 PM
Re: HELP~ raw skin....
[Re: Lola]
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flicka
Member
Registered: 04/06/00
Posts: 24616
Loc: SLO County, CA - 66.122.77.142
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Good news, Lola! You're welcome.
I guess aging does have its positive points! My youngest chid (now 35) developed a staph infection in her navel as a newborn. It went through her blood stream and popped out as boils all over her body. Thankfully, my mother was there to help me because we had to bathe her in epsom salts solution every 2 hours and give her oral/topical antibiotics. It was either that or put her back in the hospital. I thought that insane because the hospital is where the infection came from in the first place.
Anyway, I've been investigating fungal/blood borne infection forever. It's much easier to not have to go to a library to refresh my memory...
Now to find the proper remedy...
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"A lot of things were acceptable--until we stopped accepting it." -- Al Sharpton '12
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#189420 - 07/16/10 08:22 PM
Re: HELP~ raw skin....
[Re: flicka]
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flicka
Member
Registered: 04/06/00
Posts: 24616
Loc: SLO County, CA - 66.122.77.142
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Yikes! I see now why doctors don't pay much attention to it. According to this site many doctors don't believe that yeast proliferations happen in the intestines!? Many of them consider it a "fad" diagnosis.
geez
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"A lot of things were acceptable--until we stopped accepting it." -- Al Sharpton '12
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#189421 - 07/16/10 08:42 PM
Re: HELP~ raw skin....
[Re: flicka]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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hi, flicka
thank you so much for replying.
the raw skin looks almost exactly like the pic ( more surroundind the rectal area, though, not vagina ), but the nurses and doctor seem to think it is due to irritation from constant exposion to peepee and poo.
BUT i do have a tendency to develop yeast in my body, i don't know why, and why they are dissmissind this. i have had many, many yeast infections in my bladder, vagina and even in my lungs.
i wonder if the raw skin is yeast, too...
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#189424 - 07/16/10 09:53 PM
Re: HELP~ raw skin....
[Re: Lola]
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flicka
Member
Registered: 04/06/00
Posts: 24616
Loc: SLO County, CA - 66.122.77.142
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I remember when they discovered your bladder was full of yeast! In reality, it could be still only in your bladder and being spread to your anus area when your bladder spasms during your bm.
I hate it when doctors refuse to acknowledge possibilities.
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"A lot of things were acceptable--until we stopped accepting it." -- Al Sharpton '12
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#189446 - 07/17/10 06:09 PM
Re: HELP~ raw skin....
[Re: flicka]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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exactly! and i have had another nasty yeast unfection in my bladder not long ago and my bladder still bothers me a bit. the peepee containing yeast could me passing through my rectal area and contaminating it with yeast.
this theory makes sense!!
i;ve been in bed all this tie but will have to get up on wednesday to go see the nurse practitioner at my uro clinic. i will discuss this with her.
the others do think it's just irritation from pee and poo.
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#189619 - 07/20/10 07:54 AM
Re: HELP~ raw skin....
[Re: Lola]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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the raw skin is slooooooooooooowly getting better with a combination of creams/ointments ppl kibdly have suggested
but i broke a rib the other day... when it rains it pours!
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#189899 - 07/23/10 06:35 PM
Re: HELP~ raw skin....
[Re: sweetqt]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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beautiful video and song, michelle
thank you for the smile <3
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#190616 - 08/03/10 09:45 PM
Re: HELP~ raw skin....
[Re: Lola]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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i want to thank everybody who posted in this thread, especially anita and flicka.
the raw skin is getting better and i am very happy/relieved about that!
now i have a new problem to deal with .... a broken rib and inflammed muscles who are putting me to the test on how much pain i can put up with....
Edited by Lola (08/03/10 09:48 PM)
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#190653 - 08/04/10 10:22 AM
Re: HELP~ raw skin....
[Re: Lola]
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sweetqt
Member
Registered: 06/13/07
Posts: 709
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I am happy to hear that something is healing. I am sad to hear that you are in pain, again in other ways. Heal up, hun. I hope to talk to you soon.
I havent been on for a while as things here have been... crazy.. a good word, I suppose. Things are better now, better than they have been in years. Thank goodness.
Smile, love <3
Talk to you soon :)~
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#190657 - 08/04/10 10:45 AM
Re: HELP~ raw skin....
[Re: Lola]
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flicka
Member
Registered: 04/06/00
Posts: 24616
Loc: SLO County, CA - 66.122.77.142
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now i have a new problem to deal with .... a broken rib and inflammed muscles who are putting me to the test on how much pain i can put up with....
Dang girl! Hope you heal soon.
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"A lot of things were acceptable--until we stopped accepting it." -- Al Sharpton '12
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#190825 - 08/05/10 07:49 PM
Re: HELP~ raw skin....
[Re: flicka]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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thank you michelle and flicka, i appreciate it
yesterday i was in the hospital for a procedure in my SP catheter and i told them how much pain i was in. they took a chest X ray and couldn't find anything.
the doctos have no idea what it is.... i go see my PCP the 13th that is if i don't go to the ER sooner.
i am on my wits end. this pain has made me cry, which is very unusual for me.
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#190867 - 08/06/10 05:34 PM
Re: HELP~ raw skin....
[Re: flicka]
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MrsDrublic
Member
Registered: 04/03/09
Posts: 926
Loc: los angeles ish
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i have two ideas, all these sound great and i hope something works for u! aquaphor "cream" the good one is clear and feels like vaseline mostly, its made for babies and adults, helps protect against moisture irritation and what not. and i SWEAR by betadine CREAM, might have to order online, its not pricey 7.00 a tube. lil goes a long way. its wonderful for healing booboos. im sorry ur hurty sweetheart <3 feel better soon <3
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#190880 - 08/06/10 06:54 PM
Re: HELP~ raw skin....
[Re: MrsDrublic]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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thank you so much for the support, anita
mrsD. i will write down your ideas for the next time i have raw skin, since this one is really getting better now. your ideas sound great and even though i hope i never have to use them, lol, i will, if needed be.
my pain in the left side contunes strong and it is getting the best of me... hard not to feel discouraged!
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#190881 - 08/06/10 07:14 PM
Re: HELP~ raw skin....
[Re: Lola]
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MrsDrublic
Member
Registered: 04/03/09
Posts: 926
Loc: los angeles ish
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aww i understand that. im sorry u hurt so much. @}-;------------
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#190924 - 08/07/10 08:15 PM
Re: HELP~ raw skin....
[Re: MrsDrublic]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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the pain is getting worse and spreading.... i may not be able to wait until my doctor's appt and just go to the ER.
i don't know how much longer i can put up with this...
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#190949 - 08/08/10 01:46 PM
Re: HELP~ raw skin....
[Re: Lola]
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anita
Member
Registered: 03/17/09
Posts: 155
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Lola, I would not wait for the doctor's appt.
I would call the doctor's office today and tell them that you are very sick and getting worse, and that you must to speak to the doctor urgently.
If the doctor doesn't call you back this afternoon, I would go to the ER.
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#190963 - 08/08/10 06:44 PM
Re: HELP~ raw skin....
[Re: anita]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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i didn't have a ride today, but tomorrow i will call the office first thing in the morning and i will go to the ER. my friends will take me.
thank you so much for your concern, anita <3
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#191043 - 08/10/10 03:16 PM
Re: HELP~ raw skin....
[Re: Lola]
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MrsDrublic
Member
Registered: 04/03/09
Posts: 926
Loc: los angeles ish
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<3 lola
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#191089 - 08/11/10 06:48 PM
Re: HELP~ raw skin....
[Re: MrsDrublic]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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well, i spent 2 days in the hospiyal without not one, but two broken ribs, dangerously low sodium in my blood, almost had a seizure and they found out i have nodules in my lungs.
when it rains it purs! but i am happy to be back home
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#191136 - 08/12/10 06:56 PM
Re: HELP~ raw skin....
[Re: anita]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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good point, anita!
they said my sodium was so low, i could have had a seizure anytime! 
about the nodules, they are very small now, so they will be monitored with CT scan every 6 months.
thank you so much for your invaluable support, anita <3
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#191242 - 08/15/10 03:47 PM
Re: HELP~ raw skin....
[Re: Lola]
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MrsDrublic
Member
Registered: 04/03/09
Posts: 926
Loc: los angeles ish
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oh Lola!! u poor baby!!! <3 <3 <3 howd ur ribs become broken? im glad ur ok! poor thing, i hope ull get better fast, u so dont deserve to go thru all this bullsh*t
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#191252 - 08/15/10 11:06 PM
Re: HELP~ raw skin....
[Re: MrsDrublic]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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my bones must be really fragile, mrsD, because i broke my ribs leaningto reach for something on my nighstand, put my left arm underneath the rib cage and it got pressed.
i am a very slow healer, but i hope to heal in about 2 months.
what really worries me now is the low sodium... i have been vomiting a lot due to the painkiller i take for the ribs, even though i do take phenergan for nausea too, and i am afraid my levels of sodium will drop again.
i could have a fatal seizure anytime
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#191257 - 08/16/10 12:58 AM
Re: HELP~ raw skin....
[Re: Lola]
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MrsDrublic
Member
Registered: 04/03/09
Posts: 926
Loc: los angeles ish
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thas horrible Lola, im sorry u have to go thru this sh*t, i kno u must be scared, poor baby <3 is there anything u can do to help ur sodium levels? my roomie takes pills to avoid puking, maybe theyd help u too, not sure what u take, but they work on ulcer induced vomiting, maybe itll be worth a try, theyre called pantoprazole SOD DR 40mg. <3 <3 <3 feel better babes.
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#191292 - 08/16/10 10:36 PM
Re: HELP~ raw skin....
[Re: MrsDrublic]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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thank you, mrsD <3 ! do you know if the pantoprazole is OTC ( over the counter ) or i need a prescription for it?
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#191293 - 08/17/10 03:44 AM
Re: HELP~ raw skin....
[Re: Lola]
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MrsDrublic
Member
Registered: 04/03/09
Posts: 926
Loc: los angeles ish
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my roomie gets it as a Rx, so id imagine ud have to ask ur doc. not sure if theres maybe a generic version u could get otc, but its worth looking into <3
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#191326 - 08/17/10 07:10 PM
Re: HELP~ raw skin....
[Re: MrsDrublic]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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oh goody, i will ask my doc's nurse about it! thank you so much, mrsD
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#191333 - 08/17/10 08:21 PM
Re: HELP~ raw skin....
[Re: Lola]
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anita
Member
Registered: 03/17/09
Posts: 155
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Hi Lola, I hope that you're starting to heal and feel better now.
I just wanted to mention a few things that you should know about that medicine, pantoprazole.
First, pantoprazole isn't used to treat vomiting, and wouldn't help that problem, at all.
It's an acid blocker, called a "proton pump inhibitor", intended for people whose stomach makes too much acid, causing severe heartburn, ulcers, or whose stomach acid backs up from their stomach into their esophagus, causing esophageal erosion, a condition called GERD.
It also has some very serious side effects, including causing increased bone fractures of the hip, back, and wrist, and probably other bones too, and also causing osteoporosis or making it worse.
It was also found to be carcinogenic in laboratory animals, and to cause vitamin B-12 deficiency if taken for a long time.
In response to new studies showing just how dangerous this class of drugs can be, in May of this year, the FDA ordered the drug companies to place a prominent new warning label on these acid blockers, to alert doctors and patients to the dangers.
Considering the fact that you already suffer from osteoporosis and fractured ribs, and have unknown nodules in your lungs, I doubt very much that your doctor would prescribe this for you, or even allow you to take the OTC versions of it.
If you have a problem with vomiting, then your doctor can give you a medicine specifically for that, called an antiemetic.
But the way to treat your low sodium is to find out what is really causing it, and solve the problem at its cause.
Take care of yourself, and be well.
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#191341 - 08/17/10 09:25 PM
Re: HELP~ raw skin....
[Re: anita]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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anita, i just vomited a bunch of liquid i am taking phenergan but it doesn't seem to help.
they say the cause of the low sodium is that i vomit too much ( gastroparesis ) but the med dilaudid that i am taking for the pain in my ribs is making me vomit even more, especially liquids. i am so afraid i am going to have a seizure
thank you SO much for taking the time to explain to me what that drug does... sorry, mrsD, but it seems i should stay away from it!
you're a doll, anita..... thank you very much again
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#191351 - 08/18/10 09:24 AM
Re: HELP~ raw skin....
[Re: Lola]
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corlorde
Member
Registered: 04/24/01
Posts: 9246
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Hey Lola, is there any kind of specialist you can go to? There has got to be a solution for you somewhere when it comes to the regurgitation.
I hope you find something that works for you. Keep at it, don't give up.
~Corey
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#191361 - 08/18/10 10:48 AM
Re: HELP~ raw skin....
[Re: corlorde]
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anita
Member
Registered: 03/17/09
Posts: 155
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Lola, if the medicine that the doctors gave you isn't controlling the vomiting, then I would call them and let them know, because you are still in a dangerous situation. You can't keep vomiting and losing fluids and electrolytes.
Phenergan is a good anti-emetic, but if it isn't working, and you can't keep it down, your doc could switch you to something else that you don't have to swallow, like the "Scop" transdermal scopolamine patch that you stick on your skin, behind your ear. It's used mainly for motion sickness, but is also used to control nausea and vomiting caused by gastroparesis when the patient doesn't respond to other oral anti-emetics.
You can also ask your doc about trying Dilaudid suppositories instead of pills. The suppositories might cause you less nausea than the pills, while still relieving your pain.
I hope you find the answer and get well soon <3
Edited by anita (08/18/10 10:48 AM)
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#191418 - 08/18/10 09:44 PM
Re: HELP~ raw skin....
[Re: anita]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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thank you SO much for your idea, anita i will ask my doctor's nurse to talk to him first thing in the morning and will mention the patch and the suppositories.
i will keep you posted!
thank you again, you are a gem!
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#191430 - 08/19/10 11:38 AM
Re: HELP~ raw skin....
[Re: Lola]
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corlorde
Member
Registered: 04/24/01
Posts: 9246
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what worries me is the hyponatremia ( low sodium ) because i could have a fatal seizure anytime
Yeah, that must be scary to deal with
thank you for your concern, i appreciate it! how's life been treating you?
I was doing really good up until about a week ago. I was boiling some pasta in the microwave and when I went to take it out, I spilled half of it in my lap (and I had shorts on). I have 2nd and 3rd degree burns from the mid point of my right thigh to my knee. It melted the skin off. All of it. I hate the hospital with a passion but I had no choice to go as infection is a major concern but I think it's on the healing road... Now, I'm out of the sun in recovery mode taking it easy.
Other than that. I've been pretty busy and enjoying what is left of summer. I'm looking forward to the tourists leaving though, the traffic has been out of control in Meredith and the surrounding areas.
Good luck in getting well and look after yourself.
~Corey
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#191449 - 08/19/10 06:32 PM
Re: HELP~ raw skin....
[Re: corlorde]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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OUCH!!!!! i am so sorry to hear about your burns!! were you at concord hospital?
i hope you are one of those ppl who heal fast and mend quickly. i do know you always like to be on the go!
i also wish you good luck getting well. i know you will..... wife's TLC 
huggers!
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#191458 - 08/20/10 04:17 AM
Re: HELP~ raw skin....
[Re: Lola]
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corlorde
Member
Registered: 04/24/01
Posts: 9246
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No, I went to Laconia (LRGH).
Thanks, My leg looks pretty bad right now but it's on the mend (I think)
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#191480 - 08/20/10 04:09 PM
Re: HELP~ raw skin....
[Re: corlorde]
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Paul I
Member
Registered: 02/24/00
Posts: 7913
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Hi Lola,
I've been off and on a low sodium diet for years due to an inner ear problem. My point is that when I think of all the delightful things I passed up because of the high sodium content
you, with your situation, could really enjoy. V-8 (not the low sodium), nearly any fast food if your stomach can handle it, soups-
and you can put salt on anything.
Paul
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"...only the shadow knows"
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#191487 - 08/20/10 06:29 PM
Re: HELP~ raw skin....
[Re: Paul I]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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i see where you are coming from, paul, it sounds really good, doesn't it? the problem is that all i want to do is sleep and i can have a fatal seizure anytime. not good, huh?
ANITA!!!! i called my nurse and mentioned that a friend had mentioned the patch behind the ear and the doctor prescribed scopolamine 1.5 mg patches. i have one behind my ear right now and each patch lasts for 3 days. pretty expensive and i am poor, no med coverage ( 50 bucks for 3 patches )but i am hopeful!
please keep your fingers crossed f0r me that it works!!!!
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#191501 - 08/21/10 10:20 AM
Re: HELP~ raw skin....
[Re: Lola]
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anita
Member
Registered: 03/17/09
Posts: 155
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That's very good news, Lola!!!
I have my fingers crossed that it works well for you, and I'm optimistic that it will.
I think that once you get your stomach under control, all of your symptoms will improve rapidly.
With your stomach under control, you should absorb your pain medicine better, and with less pain, you are likely to have fewer stomach problems, and more likely to keep liquid food down, and restore your sodium levels to normal.
The drowsiness and nausea are very common side effects of the pain medicine, and drowsiness is also a side effect of the anti-nausea medicines, so considering all of the medicines that you are taking, it's very normal for you to want to sleep most of the time.
I know that the patches are expensive, but hopefully you won't need them for very long, because once your ribs heal, you won't need to take pain meds, and your body will return to normal.
However, if you do need to refill your prescription for patches again, there is a program sponsored by the manufacturer that may be able to provide them to you for free.
If you have no public or private prescription coverage, and your income is below a certain amount, and your doctor writes a letter saying that you need a covered medicine, then the manufacturer will send the meds you need directly to your doctor, to give to you.
I'm not sure if the patches are covered in the program, but you can call the company during the week to explain your medical condition, and to find out if the patches are covered, and get an application, so that you can get the paperwork done before you need your next refill.
The number is: 1-800-277-2254
If the company turns you down, then I would ask your doctor or his nurse to call them on your behalf, because the company will be less likely to say no to a doctor.
Good luck!
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#191542 - 08/21/10 09:26 PM
Re: HELP~ raw skin....
[Re: corlorde]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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No, I went to Laconia (LRGH).
Thanks, My leg looks pretty bad right now but it's on the mend (I think)
i didn't know laconia had a hospital. but then i am not that familiar with nothern NH. I hope they treated you well, there and the food wasn't too bad. the elliot hospital in manchester has the yummyest food i have ever tasted in hospitals.
i am so sorry your leg is so bad. it's like my ribs and low sodium; very bad but at least i can't see them.
i hope you can't feel any pain..... that would be horrible.
sending you tons of healing thoughts and prayer that you mend quick
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#191543 - 08/21/10 09:30 PM
Re: HELP~ raw skin....
[Re: Lola]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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dear anita,
i don't know how to thank you for all you have done for me... your advices have been invaluable and if weren't for you, i'd be still vomiting liquids like crazy. thank you very much, from the bottom of my heart. <3 <3
i will call the company on monday and see if i qualify for their program.
i will let you know
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#191576 - 08/22/10 08:21 PM
Re: HELP~ raw skin....
[Re: Lola]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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bumping for anita.... i just vomited solids today, not liquid
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#191578 - 08/23/10 05:32 AM
Re: HELP~ raw skin....
[Re: anita]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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setback i just vomited a bunch of liquid, lost my pain pill...
i guess given the severety of my nausea, the patch should be changed every 2 days, instead of 3.... what do you think, anita? i'm so sorry to bother you again ...
i will call the company to see if i qualify later on
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#191582 - 08/23/10 08:06 AM
Re: HELP~ raw skin....
[Re: Lola]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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oh god, today is not my day.... i just vomited another whole bunch of liquid... at least the pain pill i took for the second time kicked in before i barfed again 
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#191593 - 08/23/10 10:34 AM
Re: HELP~ raw skin....
[Re: Lola]
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anita
Member
Registered: 03/17/09
Posts: 155
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I'm sorry that you're having a bad day
Changing the patch every 2 days will not help, because they don't lose strength every day. They work at full strength for 3 days, until they are completely used up. But you should check the patch to make sure that it hasn't come loose, not even a little bit, because if it comes loose, then it will stop working and have to be changed.
Some people need more than one medication to control their vomiting, for example the patch plus an oral medication.
I would call your doctor and ask him about "Zofran ODT", which is probably the most powerful anti-emetic on the market today, and has almost no side effects.
The Zofran ODT tablets dissolve in your mouth, and work quickly to control nausea and vomiting.
The combination of Scop patches and Zofran ODT, enters your body by 2 different routes, and each medicine works in a different way to control vomiting, so the combination is usually more reliable and effective than either one alone.
Call your doc and see what he says.
Be strong and hang in there Lola, you'll get this thing under control. <3 <3
Edited by anita (08/23/10 10:38 AM)
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#191602 - 08/23/10 03:18 PM
Re: HELP~ raw skin....
[Re: anita]
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Stormi
Member
Registered: 08/17/00
Posts: 500
Loc: USA
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Oh Lola.. I'm so sorry to hear about your problems.. I get very sick with pain meds even the over counter ones... I know exactly how you feel.
Anita that sounds like a great idea, I didn't know they had meds for nausea and vomiting.
Hang in there Lola.. Luv you girl
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"Only those who dream the absurd, can ever do the impossible" -Hellen Keller
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#191615 - 08/23/10 09:33 PM
Re: HELP~ raw skin....
[Re: Stormi]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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thank you so much, anita and tara ( i love you both <3 )
anita, i will definitely call my doctor and ask about zofran. thank you SO much again
oh... i didn't have any luck with a program covering the patches... oh well, better luck next time
anyways thank you so much anita for trying to find the program for me
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#191694 - 08/24/10 06:57 PM
Re: HELP~ raw skin....
[Re: Lola]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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dear anita,
today i had to go see the nurse practinioner at my urologist office and got the call that the doctor ordered zofran and it was ready to be picked up at wal mart, where i fill my prescriptions.
WOW, is it expensive!!! i got a lecture from jay, my friend, that the next time, when i need to reach for something, call for help, because if i break another rib (s) he won't pay for expensive meds... i have told them a thousand times that it was in the middle of the night ad i didn't wanna wake up anybody, but he is stubborn.... oh well.
i have taken 2 so far and no vomiting. the test will be tomorrow, because i vomit liquids mostly in me dawn/morning.
i will report back to see what happens tomorrow... wish me luch, pls!!
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#191700 - 08/24/10 11:33 PM
Re: HELP~ raw skin....
[Re: anita]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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thank you SO very much, anita. i will call them tomorrow first thing.
i will let you know tomorrow about the vomiting.
<3 <3
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#191727 - 08/25/10 12:20 PM
Re: HELP~ raw skin....
[Re: Lola]
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MrsDrublic
Member
Registered: 04/03/09
Posts: 926
Loc: los angeles ish
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poor Lola! i hope u find relief soon, if i can help u afford ur patches ill chip in. u shouldnt go thru this crap. we love u here doll face <3 <3 <3 keep us posted
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#191741 - 08/25/10 07:20 PM
Re: HELP~ raw skin....
[Re: MrsDrublic]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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mrsD, you are an angel... thank you so much for your kindness! you have to save your money for your move to canada, divorce, mini you... i couldn't accept$$ from you, angel
but thank you so much again... you are a real friend
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#191742 - 08/25/10 07:25 PM
Re: HELP~ raw skin....
[Re: Lola]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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anita, dear, the zofran so far is doing the job 
you are my other angel... thank you SO much
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#191806 - 08/26/10 07:15 PM
Re: HELP~ raw skin....
[Re: anita]
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MrsDrublic
Member
Registered: 04/03/09
Posts: 926
Loc: los angeles ish
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Perfect! That's just what we want, one good day after another! Now we just have to keep our fingers crossed that everything keeps working this well, and that you keep getting stronger day by day until you are all better and we can celebrate your complete recovery <3 ^^^^^^^^^^^^^^^^^^^ YES!!!! i concur! <3
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#191811 - 08/26/10 08:05 PM
Re: HELP~ raw skin....
[Re: anita]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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i still feel weak and sometimes still nauseous, but i haven't vomited liquids anymore, just the regular stuff i vomit due to my gastroparesis.
thank you so much for helping me in this journey, anita. you are/were invaluable!!
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#191818 - 08/26/10 08:59 PM
Re: HELP~ raw skin....
[Re: Lola]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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spoke too soon... i was feeling so confident i wouldn't vomit anymore liquids that i forgot to take my zofran at 8 .... i just vomited a bunch of liquid .... oh god do i hate setbacks i guess i will have to keep taking zofran till who knows when!
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#191876 - 08/27/10 10:01 PM
Re: HELP~ raw skin....
[Re: Lola]
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MrsDrublic
Member
Registered: 04/03/09
Posts: 926
Loc: los angeles ish
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poor u <3 i hope summin helps u soon, this yo yo ing is bad. when do u get ur sodium levels checked again?
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#191882 - 08/28/10 06:32 AM
Re: HELP~ raw skin....
[Re: MrsDrublic]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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hi, mrsD
thank you for the post!
i went to my PCP's office yesterday, found out i am borderline anemic, too, besides the sodium, so i had some bloodwork done.
i can't wait to know the results... anytime next week, i'd think...
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#191899 - 08/28/10 06:37 PM
Re: HELP~ raw skin....
[Re: Lola]
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Paul I
Member
Registered: 02/24/00
Posts: 7913
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Protein, protein, protein! Try Boost, ensure, lots of yogurt,
eggs,meat and fish. You'll see a difference.
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"...only the shadow knows"
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#191901 - 08/28/10 08:40 PM
Re: HELP~ raw skin....
[Re: Paul I]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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thank you for replying, paul
i can do boost, ensure and yogurt ( i eat activia every day ) ... i love eggs, meat and fish, but due to my gastroparesis, i vomit them
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#191903 - 08/29/10 03:44 AM
Re: HELP~ raw skin....
[Re: Lola]
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MrsDrublic
Member
Registered: 04/03/09
Posts: 926
Loc: los angeles ish
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hi, mrsD thank you for the post! i went to my PCP's office yesterday, found out i am borderline anemic, too, besides the sodium, so i had some bloodwork done. i can't wait to know the results... anytime next week, i'd think...
im dying to hear the results too! i wish i could do more to help than just be supportive, i know u have ppl around u that love u, but id like to give u a hug( a careful one, i kno ur still hurting :P ) ... if u need nething, im here. i hope u start feeling better soon doll <3 <3 <3
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#191904 - 08/29/10 06:51 AM
Re: HELP~ raw skin....
[Re: MrsDrublic]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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dear mrsD,
i will let you know when the results come back! thank you SO much for the hug and especially for being there for me... it means a lot to me, hon <3 <3 <3 <3
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#191914 - 08/29/10 07:04 PM
Re: HELP~ raw skin....
[Re: Lola]
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MrsDrublic
Member
Registered: 04/03/09
Posts: 926
Loc: los angeles ish
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yvw doll. ur awesome, and i think u need and deserve a support system, im sure u have one, but another person cant hurt :P xoxoxox <3<3<3<3
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#191917 - 08/29/10 09:10 PM
Re: HELP~ raw skin....
[Re: MrsDrublic]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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you are awesome, mrsD! i appreciate SO much your concern about me, given that you have so many things happening in your life right now.
you are a real friend! <3 <3 <3
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#191933 - 08/30/10 01:09 PM
Re: HELP~ raw skin....
[Re: Lola]
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MrsDrublic
Member
Registered: 04/03/09
Posts: 926
Loc: los angeles ish
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well u are a good person, and ur worth more than what lifes given u, it should be appreciated. muahhhhhhhhhhhhh <3 <3 <3 <3
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#193458 - 10/01/10 04:41 PM
Re: HELP~ raw skin....
[Re: Lola]
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lindac
Junior Member
Registered: 10/01/10
Posts: 9
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I ran a GI office for 18yrs as a manager but you do learn alot during that many years The epifoam will work in time while using it try 1 using a mini thin pad folded in half cut it if you have to so it is no longer than 2 inches. 2- as with any cut another rule of thought is to keep it moist while it heal so you can put sterel water on the pad and ring it out along with the foam it will at least stop the burning feeling
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#193520 - 10/02/10 08:06 PM
Re: HELP~ raw skin....
[Re: lindac]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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thank you for the advice, linda!
i may need it again .... another spot is getting very irritated around my rectal area.
it's all i need with all the health problems i am dealing with now....
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