#183595 - 03/12/10 11:35 PM
Some new hope for Central pain
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Robbo96b
Member
Registered: 12/11/08
Posts: 192
Loc: Sunny California
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Last month I tried Dronabinol, no luck. It's only supposed to help with appetite, I don't much need help with that anyway, I could use some help though. Pot didn't help that much either, being less constipated would help for sure. It's for chemotherapy patients mostly. Smoking pot, some pot... works excellent for central pain. I saw a debate type show on PBS about a new pill made of synthetic cannabinoids, different from Dronabinol but I didn't get the name. It's more likely to help with Central pain. All the side affects are the same as regular pot, accept for the handcuffs, jail time etc. That's what it says on most of the net. And it won't make my apartment smell like excellent skunk buds even with just a couple plants, it ain't weed. Hopefully my insurance covers it. Putting smoke in my lungs is still not something I'm willing to do unless it's the absolute last resort. I like the idea of the vaporizer, but it's still way beyond my budget and living in low income housing subjects me to what feels like socialist, almost communist rules and control, I would get kicked out for growing my own. Over time that may change. Maybe not with Obama n the big money who really pulls the strings.... I used to like smoking just the leaves, literally 3 or four palm sized leaves dried in the sun helped my pain. But not without the help of much less than half my reg dose of methadone, and spasms medz. At that low of a dosage of opiates etc. I could poop just fine with working up a dang sweat!
I hope to come back with good news in a few weeks. The new stuff I found is Nabilone, aka Cesamate. Has anyone tried it? I can't imagine taking methadone, baclofen and diazepam for the rest of my life. I'd rather have a short life without suffering than a long life feeling like I'm soaking in acid. But I hate the fact that many normal people just assume I'm addicted. very freakin insulting! I just found out that a lot of the staff at my pain management doctor also have to deal with prejudice. People think their just glorified drug dealers. What a dang Crock a Crap!
Anyone with experience with this new drug out there? I like the pills idea much better.
"They" grow even the stuff for the cannibus clubs in our national parks, and any fool with a lie that it helps with pain management can get a card. They're at least 300 bux here in Ca. They should at least tax the dang crap. The chemicals they use to grow it slowly working it's way up the food chain and poisoning everything that eats or breathes with the pesticides, and fertilizers that destroy everything that our great grandkids will need to eat n breath, and the water of course. Unfortunately most of our offspring will be paying the price for us to eat good steaks, soda sweetened with GMO tainted high fructose corn syrup, and endless other toxins we haven't even found out about yet.
It would take four earth size planets for us to produce enough grain for the whole world to eat as much meat as we do in America.
Thanks, wish me luck.
PS next time you smoke a lil pot, think about the volume of weed our society smokes, and the all the toxins you burn along with your pain killer. The side affects to our society as a whole, and the health care costs our hippie baby boomers are gonna need for putting all that smoke in their lungs. I doubt my daughter would be doing so well in school if she was a pot head. If she was, she would be one of the very rare and few that could party just a lil bit still succeed. The taxes for our health care is gonna really piss off her generation. It's a miracle I graduated, I was never there!!, and asleep in class when I waszzzzzzz but look at how smart I am now? (lil joke)
No fraken genious huh?
_________________________
"The entire law is summed up in a single command: Love your neighbor as yourself"
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#186071 - 04/23/10 09:09 PM
Re: Some new hope for Central pain
[Re: Robbo96b]
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Robbo96b
Member
Registered: 12/11/08
Posts: 192
Loc: Sunny California
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Welp, the Nabilone, aka Cesamate was not covered, at the pharmacy they literally told me it was $2200.00, I even double checked just in case I heard the first person wrong. That’s for a one month supply, I’m pretty sure it was 5mg at 3 per day, the starting dosage. Crazy huh? So that was out. I waited another month and waited…for my next appointment… long wait, and awful! It’s nearly impossible for me to find plain old weed, and it’s definitely not a long term solution to me under any circumstances. So I got through it without flipping out and became willing to try the dronabinol again. It needs to be refrigerated, I didn’t realize it for a couple weeks after I got it the first time. I doubt that’s the reason it hardly worked, that could be a small factor. Also, I was never able to try it with much less opiate in my body. Methadone is very long acting, when my dosage was actually below a goal I’ve had for about 8 years. (60mg) and no breakthrough pain meds. That’s when I noticed synthetic THC may be helping after all. Very much the same cooling sensation as smoking a dube. The doctors and pharmacists don’t know much about it. Unlike smoking pot, pretty slow acting. Maybe similarly to SSRI meds for depression. I should have more, and clearer results later on. But I’m definitely going to keep taking the synthetic THC pills, and backing off on the pain and spasm meds. I just can’t expect the same results as smoking pot. I don’t seem to get “high” I’ll bet that may be why it’s not too popular. A small part of me is disappointed, but I’m sure that I’m better off not being high every freakin day. I don't take much spasms meds so cutting back on that should be pretty easy.
Hopefully this post will spark some interest, more people will try it. In the long run I think it’s reasonable for us to expect better health simply from not putting smoke in our lungs on purpose, AND holding our breath! while it’s seriously injuring our lungs, heart, the whole cardiovascular system. I know pot affects most people differently, in general. We can all trust that the vast majority of us substituting Dronabinol instead of high dosages of opiates, or other drugs that cause side affects almost as bad as the pain, will be better off. Time will tell. It’s awesome not digging very hard poop outa me most of the time, and having a very strict diet that didn’t always work anyway. And much less forcing myself to eat instead of having an appetite. I think I may still have to take a small amount of opiate medication, but without the miserable side affects that higher dosages cause. And so far none of that brain fog that allows me to make very dumb mistakes. I’m just now starting to cut back on the spasm medications expecting the Dronabinol to help with spasms as well as the pain and appetite. Maybe for some of us it will turn out to be the best option. I cut back on opiates first, and separately from the spasms meds. Make sense?
I know this, I’m fed up with meds that slowly hurt my insides, digestion, lungs, and brain function. Plus other affects most pot smokers are in denial of, or just willing to accept because they like to get high. Trying to substitute the Dronabinol for Methadone, diazepam, and baclofen will be much longer of a process than I expected.
I’m surprised not too many people have tried it. Hopefully I’m just wrong and the information on that is hidden somewhere deep in the Internet, too hard to find just yet. The most recognizable name is Marinol. Dronabinol is the generic. Maybe Marinol was too expensive in the past. Or just like pot, different people had different results, I was told about 11 years ago that it was just too dang strong, so I never tried it, that was the opinion of just a couple people. We shall see.
Best of all, the dronabinol hasn’t affected my spiritual condition, or interfered with my relationship with God. That could be because when I smoke pot, I’m very aware of the damage I’m doing to my memory, lungs, and ambition. My common sense remains intact. So far.
Praying for help to be honest with myself about all this change is the smartest kind of common sense I can think of. If you’re into that sorta thing. Please keep me in your prayers, and if you have friends or family that have pain like some of us have let em know there’s a medication that may have just fallen through the cracks of our broken down and retarded health care system. My only worry is that even though it’s covered, the cost to my insurance may hit what amounts to a annual limit of prescription coverage. A “cap“. And I have to make sure it mixes well with Bushmills, (lil joke) hehe. Thank you for your time.
P.S. If your pissed off about my use of the word retarded, look in up in the dictionary. Or Google it! In this context I mean to say it’s “held back”. And our health care system is becoming very scary indeed.
_________________________
"The entire law is summed up in a single command: Love your neighbor as yourself"
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#194635 - 10/24/10 10:06 AM
Re: Some new hope for Central pain
[Re: Robbo96b]
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Johnboy 64
Member
Registered: 11/16/01
Posts: 15944
Loc: a nice place
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i tried ignoring my pain as long as possible. my doc gave me lidocane patches to 'help'. they dont stop pai, but thy do help.
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#194732 - 10/26/10 09:21 PM
Re: Some new hope for Central pain
[Re: Johnboy 64]
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ladyheart
Member
Registered: 02/24/00
Posts: 3392
Loc: on a pathway, somewhat smooth,...
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Sorry JB that you are now dealing with this additional pain issue.
Glad the patches give you some relief.
take care,
Donna
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#196579 - 12/27/10 05:10 PM
Re: Some new hope for Central pain
[Re: ladyheart]
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Akasha
Junior Member
Registered: 12/27/10
Posts: 2
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I'm so excited to read that it's helping! I live in Kansas where the waves of grain still sway. I have chronic nerve pain from lesions in my spinal cord and brain. I traveled to the Mayo Clinic in Rochester,MN before my doctors here believed I had pain. I too have been considered an addict and was fired from my first neurologist. "deterioration of dr/patient relationship." all I wanted was a round of steroids to ease the inflammation of my flare. Anyways, I digress...thanks for sharing your experience and hope.
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#202265 - 06/03/12 02:09 PM
Re: Some new hope for Central pain
[Re: Akasha]
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Mac
Junior Member
Registered: 06/03/12
Posts: 1
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I'm in the same situation, as far as having nerve pain and not wanting Rx narcotics as a solution(they dont work anyway). Did you ever find anything to help?
Hoping and wishing?
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#202817 - 08/08/12 11:11 AM
Re: Some new hope for Central pain
[Re: Robbo96b]
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kysilver77
Junior Member
Registered: 10/16/09
Posts: 23
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hey guys and girls has anyone tried or talked to their Doctor about Lyrica, its on the home page of newmobility. It says that FDA just released inthe last couple of years. I have an appoinment this afternoon which I'll see what the doctor says. I'v not been able to get much info. But I'll try.
Ed
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