#147782 - 03/10/09 09:08 PM
Re: Post Polio
[Re: YosemiteSam]
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Terri Lee
Junior Member
Registered: 03/01/09
Posts: 10
Loc: Northern California
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Bob, didn't hear back... are you in or around Grass Valley?
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If God had a refrigerator, your picture would be on it!!
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#148997 - 03/22/09 07:19 PM
Re: Post Polio
[Re: Terri Lee]
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Terri Lee
Junior Member
Registered: 03/01/09
Posts: 10
Loc: Northern California
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Is this a posted site or is it dead.. last time I wrote was the last posting... sad!
_________________________
If God had a refrigerator, your picture would be on it!!
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#149461 - 04/01/09 02:35 PM
Re: Post Polio
[Re: john55555]
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mgandy1010
Junior Member
Registered: 10/20/08
Posts: 3
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Hey There...
My name is Mark...I contracted polio in 1956 at age 2...was diagnosed with "post-polio" 15 years ago. Until that day I had never heard of post-polio nor was I prepared for what was to come.
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#149466 - 04/01/09 02:45 PM
Re: Post Polio
[Re: john55555]
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mgandy1010
Junior Member
Registered: 10/20/08
Posts: 3
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Yup
LOL ...everything just seems to be failing one after the other...... last week Dr. diagnosed carpal tunnel on top of everything else...LOL
mark
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#149494 - 04/01/09 06:37 PM
Re: Post Polio
[Re: john55555]
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WadeH
Junior Member
Registered: 04/01/09
Posts: 1
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Aloha All!! Yep, here in beautiful Hawaii. Got polio when I turned 5 in October 1958, not sure if its pps but noticed that I was feeling weaker in 2000, but it could have started earlier. Started to cut out some activities about that time.
Back in '58 was paralyzed from the neck down. The treatment: wrapped in hot blanket than dipped into iced water, iron lung. Surgeries done shoulder and ankle fusion. On other ankle so drop ankle don't be as bad, wrist tendon re-position.
Wore braces from the chest down, but went to not having any support braces in 7th grade to this day. Not able to use crutches because I can't support my body weight. Broke my shoulder twice, but bounced back quickly (pre 2000) now fractured knee and confined to a wheelchair in my home (collecting tdi)and not able to transfer chair to bed......
Trying to stay positive
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#149850 - 04/04/09 09:54 PM
Re: Post Polio
[Re: WadeH]
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midwife4Him
Junior Member
Registered: 03/31/09
Posts: 1
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Hey, Wade! You're going to make it! We all find THE way to do so, whatever that is... I'm back in full leg brace on right leg, except for work when I see patients.. I walk with the brace and a cane... I get around best in my power chair! Decided excepting it with a smile... knowing the alternative is to do nothing.... hang in there!
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#156637 - 07/09/09 12:48 PM
Re: Post Polio
[Re: john55555]
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AnnieA920
Junior Member
Registered: 07/09/09
Posts: 3
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I got Polio most likely from the vaccine as I had had my vaccines and boosters. There is a documentary that I watched on NetFlix that tells of a lab in California called "Cutter Lab" that distributed a Lot of tainted vaccines. An estimate of 200,000 children were infected. It was not commonly known. We knew of no one else in our neighborhood or family who had contracted polio. I had no exposure that we were aware of. Wonder how many of you had had your vaccines. I contracted Polio in the summer of 1957.
Annie
Edited by AnnieA920 (07/09/09 12:49 PM)
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#156644 - 07/09/09 02:24 PM
Re: Post Polio
[Re: Terri Lee]
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YosemiteSam
Member
Registered: 05/20/00
Posts: 5386
Loc: No. Calif. (SF Bay Area)
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Bob, didn't hear back... are you in or around Grass Valley?
Terri, I don't know if you still read this board. I sent you a PM shortly after you posed this question. If you aren't familiar with how the board works, left click on "My Stuff" at the top of the page, then click on "My Messages".
_________________________
 Bob
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#156645 - 07/09/09 02:24 PM
Re: Post Polio
[Re: AnnieA920]
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MerryA
Member
Registered: 01/10/04
Posts: 10887
Loc: Tennessee
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Annie - I had the vaccine and still caught polio. But I feel sure the shot didn't give it to me, the shot just didn't protect me. The gestation period for the virus is only 10-14 days so if you didn't get sick within that time period of having the vaccine, you are probably like me and just weren't protected.
I had heard there was a some bad vaccine given in Nebraska too.
I feel sure my brother and middle sister has non-paralytic polio the same time I had the bulbar. We were all sick and the doctor said we all has a "bug" - I was paralyzed from the neck down too but was misdiagnosed so no hospital or iron lung. A miracle I didn't die. 
Welcome to all the "new" PPS folks.
Merry - Polio 1962, PPS mid-1980's
_________________________
"I was curious. Since I'm not a cat, that's not dangerous."
- Greg House
76.22.172.94
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#156657 - 07/09/09 10:54 PM
Re: Post Polio
[Re: MerryA]
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AnnieA920
Junior Member
Registered: 07/09/09
Posts: 3
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I believe for the simple fact that no one we knew including anyone in my family or the families in the area had contracted polio, that points to contraction of the disease through tainted vaccines.I have had doctors admit that most likely it was the case in my case.
There is such a thing as the virus lying dormant as well. I don't know how long after the vaccine that I fell ill. I had a very bad case and was not expected to live. I have always had a good immune system, was not a sickly child before polio, one of my brothers was more prone to colds and other childhood illnesses but he never became ill. There were 200,000 children who were given vaccines that caused the illness this is documented. I have never asked my parents the time frame of the booster in relation to onset. It well could have been within two weeks.
There is much that the general public is not aware of concerning diseases contracted from various vaccines as well as autism being triggered by mercury based vaccines. Am not particularly trusting of medical establishment anyway.
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#156659 - 07/09/09 11:10 PM
Re: Post Polio
[Re: AnnieA920]
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AnnieA920
Junior Member
Registered: 07/09/09
Posts: 3
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I contracted polio in the summer before I turned 4 years old in September. I was in the hospital for 3 months and according to my parents report was in danger of dying. I walked with long leg braces and with crutches until this day 52 years later. I was diagnosed with PPS at age 38 when I began to have extreme fatigue. From 1992 when I retired from my job in Social Work until 1999, I had to rest for a day before making a 2 hour trip to and 2 hour trip back from a nearby city for necessary appointments. I had no stamina and seemed to get weaker and weaker. In 1999 and 2000 around Easter of both years I started have rigors every hour 24 hours per day. I called the specialist, they said I had to come in. I couldn't sit up much less get to the doctor, was afraid of catching something in a hospital as staph infection is commonly caught while in hospitals. I took Ibuprofen and suffered night and day every hour for about 2 weeks, then it began to get slowly better. I got back to my pre-rigor stage in about 3 months of bed rest. The second year I went through exactly the same. My brother suggested an air cleaner because he knew I sometimes had allergies. I bought the air cleaner for that, I got better and I began to get my stamina back, until in 2004 I was able to work again in my own business at home. I don't have to rest for a day to make trips, I don't have many of the symptoms that I had before.
After discussion of some facts with a doctor and other experts I came the conclusion that I had an allergic reaction to mold. The air cleaner killed mold and it would not grow. I had previously gotten Clorox and cleaned it from the walls as it would grow on the lower north wall of my bedroom. I do still use a manual chair but still walk as well. The only thing I deal with now is sciatica due primarily to effects of one side of my body not being balanced with the other. All that said to say that in most every way, I am better now than I was 10 years ago. I don't take tons of medicine, take Vitalive vitamins, and am excited to see what is next. Maybe what I have written may encourage someone else.
Annie
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#172546 - 11/17/09 08:00 PM
Re: Post Polio
[Re: AnnieA920]
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archer
Junior Member
Registered: 11/17/09
Posts: 2
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Looks like it's been a long time since anyone has posted here. I'm new, just found the forums. Learned about NM from Dr. Bruno, but can't remember how I found him!
Caught polio in '53 at age 4. I was lucky, and after surgery to fuse ankle bones at age 14 I was able to do away with crutches and leg braces and go with a cane. PPS showed up at around age 50 after breaking a leg while on a business trip. Before that, I had an active career and traveled the world. Now I stay close to home. Still using a cane, but I have to have two of them if much walking is involved. I work part-time from home on the computer and phone, and draw SS disability. I can see a power chair in the near future. I like to get outdoors and walk my property, so I'm thinking of one of the 4WD models.
My wife is also a polio survivor. She "shows" better than I do, less obvious disability, but her peripheral neuropathy keeps her in pain a lot. She survived lung cancer, 5 years since her right lung was removed. The trauma of surgery aggravated her symptoms considerably.
Anyone have any recommendations on a rough-ground power chair?
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#172612 - 11/18/09 01:31 PM
Re: Post Polio
[Re: archer]
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paradocs
Member
Registered: 11/20/04
Posts: 2323
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Welcome.
I'm still using a manual chair so I can't comment on power chairs. There is a site called wheelchairjunkie
http://www.wheelchairjunkie.com
Try posting your question there. When you find a chair that works well for you, please report back here.
Edited by paradocs (11/18/09 01:32 PM)
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#172708 - 11/18/09 07:18 PM
Re: Post Polio
[Re: paradocs]
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archer
Junior Member
Registered: 11/17/09
Posts: 2
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Thanks, paradocs. Like that handle! I'll check out the junkie site.
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