#146489 - 02/17/09 11:06 PM
Re: Post Polio
[Re: john55555]
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LuckyEd
Junior Member
Registered: 02/17/09
Posts: 3
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New to the board. original Polio 1951, my wife in '50. Margaret was around 45 to 50 for first sighs of PPS she went from our "pretend we are able bodied" to must KPO, crutches and fatigue within a year or two. I did not show signs until I was around 60.
went from a single KPO to double and a walking stick...but can still play a good game of standing table tennis and keep up the house and I must really overdue before I note any mental/emotional/physical fatigue. I am truly a LuckyEd!
I am checking out wheelchair life because I can see it coming as my "last" leg is going fast and I prefer the idea of a wheelchair to that of giving up those things I like to do. and yes...I wont have a leg to stand on...LOL
Well that is my introduction. I will watch this board and jump in when I can.
Be Happy
Do not interfere with the happiness of others
Help others be happy when you can
Ed
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#146794 - 02/20/09 07:37 PM
Re: Post Polio
[Re: john55555]
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bmbrooks
Junior Member
Registered: 02/20/09
Posts: 1
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Hi John
I also got polio in '49--in public swimming pool in Indiana. A big year for polio, '49. I was visiting Indiana from Baltimore. By the time I got back, on a train, I was unable to walk. In isolation for four months, then hospital for over a year. Braces on legs, spine, left arm. Walked again without braces at 15. Accident in which I broke my neck and lower spine brought on PPS as well. Surgery on neck went well. Lower spine--not so good. Have not stood upright or walked since '02.
Brooksie
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#147354 - 03/02/09 09:18 PM
Re: Post Polio
[Re: john55555]
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Terri Lee
Junior Member
Registered: 03/01/09
Posts: 10
Loc: Northern California
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Hi! I developed polio at 22 months old, was playing with another little girl who had just been vaccinated days before. No one else in my family contracted it. I had what was then called "bulbar polio", got my spinal cord area, waist down. After several surgeries and years with bilateral braces and crutches, I finally walked brace/crutch free. About 6yrs ago I began to have muscle weakness on my mainly affected right side, leg. I am a nurse practitioner working 5 days a week/8-10hr days, on my feet. It takes it's toll on me. For other than office,I use my powerchair for going to store, attending conferences, etc, which makes me feel very free! I can go fast, wheel on uneven ground, gravel, etc, which until I got my chair 2 yrs ago, was a REAL challenge! I am back in a full length leg brace on the right. Went to PP clinic and they dx'd me with PPS. When they said I needed to use a brace, and showed it to me, it looked somewhat the same as when I was a little girl - broke down and sobbed...! I couldn't believe I was going to have to do that again! It has turned out to be what keeps me up and walking, keeps me from falling! It's turned out to be a great thing... once I got over having to return to it. Life goes on....!
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If God had a refrigerator, your picture would be on it!!
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#147356 - 03/02/09 10:49 PM
Re: Post Polio
[Re: Terri Lee]
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MerryA
Member
Registered: 01/10/04
Posts: 10887
Loc: Tennessee
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Welcome to all the new folks! Glad you are here - sorry for the reason.
When they said I needed to use a brace, and showed it to me, it looked somewhat the same as when I was a little girl - broke down and sobbed...! I couldn't believe I was going to have to do that again!
I know - I cried for days when I realized I had to go to a chair after 30+ years out of one. The chair is the only way I can function though so thank God we have the technology!
I am registered and have paid for retreat and conference in April in Warm Springs. Any one else from here going?
_________________________
"I was curious. Since I'm not a cat, that's not dangerous."
- Greg House
76.22.172.94
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#147359 - 03/03/09 12:45 AM
Re: Post Polio
[Re: MerryA]
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LuckyEd
Junior Member
Registered: 02/17/09
Posts: 3
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Remember the great times we had proving to ourselves and others that, despite the minor inconvenience of polio, we could do anything as well and often times better than anyone else!
Well PPS is giving us another opportunity to once more overcome.......ain't life great!
Be Happy
Do not interfere with the happiness of others
Help others be happy when you can
Ed
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#147391 - 03/03/09 08:39 PM
Re: Post Polio
[Re: MerryA]
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Terri Lee
Junior Member
Registered: 03/01/09
Posts: 10
Loc: Northern California
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I read about the Warm Springs coference, wish I had the time and money to go! It is awesome talking with you all, feels good to be understood! My dh (dear husband)is upset at me right now because I just can't seem to trust my right leg in snow and on ice. "Why do you fight me" is his question when he feels he's helping..... With the brace... yes, hard to fall... but I have proven more than once that I still can fall, like a tree when you can't bend your knee. The ice is very scary for me to move on because there's nothing... I just feel my foot sliding whichever way it decides to go! Can't use my power chair from van to house... no ramp. We are trying to find an electric lift, but so far very expensive!
_________________________
If God had a refrigerator, your picture would be on it!!
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#147392 - 03/03/09 08:48 PM
Re: Post Polio
[Re: Terri Lee]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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what about a portable ramp, terry?
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#147394 - 03/03/09 08:56 PM
Re: Post Polio
[Re: Terri Lee]
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Terri Lee
Junior Member
Registered: 03/01/09
Posts: 10
Loc: Northern California
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Actually... I just read my own note and realize I wanted to say we are praying for a van lift, not ground to house lift! Whoops!
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If God had a refrigerator, your picture would be on it!!
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#147505 - 03/05/09 10:30 PM
Re: Post Polio
[Re: Lola]
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Terri Lee
Junior Member
Registered: 03/01/09
Posts: 10
Loc: Northern California
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I lol because I just noted in my note that I said that I had bulbar polio... opposite.. had paralytic polio... but then you all probably figured I was brain dead on that! Lola, thanks for writing to me! We do have portable ramps, at some time it will be hard on my dh to take them out and put them back in... on our "wish list" to some day have an electric one to make it easier on him, and faster... we live in snow country here in Northen California, so faster we can load in this seson, the better! Hope to hear back from you all! Terri
_________________________
If God had a refrigerator, your picture would be on it!!
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#147506 - 03/05/09 10:31 PM
Re: Post Polio
[Re: Terri Lee]
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Terri Lee
Junior Member
Registered: 03/01/09
Posts: 10
Loc: Northern California
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I just noticed that I'm a "junior member"... what's that mean?
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If God had a refrigerator, your picture would be on it!!
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#147507 - 03/05/09 10:46 PM
Re: Post Polio
[Re: LuckyEd]
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Terri Lee
Junior Member
Registered: 03/01/09
Posts: 10
Loc: Northern California
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I love your attitude! Keep jumping in there! 
_________________________
If God had a refrigerator, your picture would be on it!!
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#147537 - 03/06/09 04:05 PM
Re: Post Polio
[Re: Terri Lee]
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paradocs
Member
Registered: 11/20/04
Posts: 2323
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I believe "Junior Member" and "Member" are simply indications of the number of times you have posted. I don't know what the actual number of posts required to move from "Junior" to "Member" is, however. If I am wrong, I'm sure someone will correct me.
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#147539 - 03/06/09 05:19 PM
Re: Post Polio
[Re: paradocs]
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sienna
Member
Registered: 02/09/09
Posts: 213
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The F.A.Q's says after 30 posts you are a Member.
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#147541 - 03/06/09 05:52 PM
Re: Post Polio
[Re: Terri Lee]
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YosemiteSam
Member
Registered: 05/20/00
Posts: 5386
Loc: No. Calif. (SF Bay Area)
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I lol because I just noted in my note that I said that I had bulbar polio... opposite.. had paralytic polio... but then you all probably figured I was brain dead on that! Lola, thanks for writing to me! We do have portable ramps, at some time it will be hard on my dh to take them out and put them back in... on our "wish list" to some day have an electric one to make it easier on him, and faster... we live in snow country here in Northen California, so faster we can load in this seson, the better! Hope to hear back from you all! Terri
Are you in Truckee or thereabouts? I'm in NorCal, but way below the snowline.
Welcome to the board. Did you find New Mobility from Dr Bruno's PPS Forum in NM Magazine?
_________________________
 Bob
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#147611 - 03/08/09 12:26 PM
Re: Post Polio
[Re: YosemiteSam]
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Terri Lee
Junior Member
Registered: 03/01/09
Posts: 10
Loc: Northern California
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I'm in Susanville, Ca. We are at 4800'. Right about base of Diamond Peak.... today is actually feeling like spring! Looking forward to warmer weather.. though we do need the precip for dryer times. Are you around Grass Valley? Actually, think I was looking on line for PPS info and New Mobility came up... but not positive... love the magazine. I am toying with the thought of getting a use handcycle.... anyone out there have one? It would be a great way to exercise and get out in the sunny... or cloudy weather! I have my power chair, but, feeling the ablilty of exercising should be a nice change! I would like to ask if anyone else is irritated with all the able bodied people that are parking in the handicapped parking...? think my dh is even more irritated than me! He wants to get business cards that say something about "being..... doesn't count for a disability" don't want to offend those that this does not pertain to... if you are disabled, and I am, and could use those van parking places... and I'm not skinny.... anyway you get the picture, I pray you can give good ideas to add to the list!
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If God had a refrigerator, your picture would be on it!!
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