#96121 - 11/15/07 05:31 PM
Re: Post Polio
[Re: joyt]
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Lola
Member
Registered: 03/17/05
Posts: 5944
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welcome, nonniebee!  i'm also a quad
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#96804 - 11/19/07 12:25 PM
Re: Post Polio
[Re: Lola]
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MerryA
Member
Registered: 01/10/04
Posts: 10887
Loc: Tennessee
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John55555
MerryA
ladyheart
BillD
spinner
paradocs
strungetta
RedBaron
Sandee3535
Linda D.
Ben T
cowboymom
Nonniebee
Wow, that is quite a list of PPSers - where did they all go?
_________________________
"I was curious. Since I'm not a cat, that's not dangerous."
- Greg House
76.22.172.94
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#96838 - 11/19/07 02:12 PM
Re: Post Polio
[Re: MerryA]
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ladyheart
Member
Registered: 02/24/00
Posts: 3392
Loc: on a pathway, somewhat smooth,...
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am still here, kinda, sorta, sometimes, when the spirit moves me, or "red flags" pop out like PPS topics like this one.
Hi Merry!
take care,
Donna
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#97925 - 11/25/07 08:50 AM
Re: Post Polio
[Re: ladyheart]
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ted4753
Junior Member
Registered: 11/25/07
Posts: 2
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Hello all. I am a polio from 1953. Came down with it about a month before my sixth birthday. I found out on my sixth birthday I was going to be getting braces rather than a bicycle I had been promised. I was not a model patient from that point. I spent the next ten years in braces until I quit wearing them in high school. I had to go back into short braces about 4 years ago after being told I should in 1999 when I was tripping over everything. Now facing the prospects of the future. Ted
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#97965 - 11/25/07 09:08 PM
Re: Post Polio
[Re: ted4753]
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ladyheart
Member
Registered: 02/24/00
Posts: 3392
Loc: on a pathway, somewhat smooth,...
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Hi Ted, sorry for the circumstances that led you here to New Mobility but there are some fellow polio survivors here to share some "war" stories or to help find information and support.
Many of us are facing PPS issues daily too, feel free to post as you feel comfortable or if you prefer send a PM or e-mail.
take care,
Donna
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#99017 - 12/14/07 03:53 AM
Re: Post Polio
[Re: ladyheart]
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ted4753
Junior Member
Registered: 11/25/07
Posts: 2
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Hi ladyheart, this is not the easiest thread to find. Thanks for the welcome. I guess it was not easy for any of us to find out braces were going to become part of our lives. It might have been better not finding out on my birthday. They were just not quite the present I thought I was getting.
Still trying,
Ted
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#99049 - 12/14/07 05:18 PM
Re: Post Polio
[Re: ted4753]
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Robo410
Member
Registered: 02/07/01
Posts: 2999
Loc: steel: it does a body good
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Forgot one, me. Apparently had inactive vaccine and got the bug in late summer 1970. Braces and crutches since then, wc for long hauls since 1995 and for teaching day to day too since 2003. My shoulders don't take much swing thru anymore. As for the ortho equipment, I find the new stuff (thermo plast etc) very uncomfortable and still use my old gear...leather breathes and there is a lot less steel around me than there was plastic.
As for breathing, I should be tested for sleep apnea I guess. It is one of the first symptoms of returning problems.
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#99085 - 12/15/07 02:45 PM
Re: Post Polio
[Re: Robo410]
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ladyheart
Member
Registered: 02/24/00
Posts: 3392
Loc: on a pathway, somewhat smooth,...
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The John P. Murtha Neuroscience and Pain Institute,
Johnstown, Pennsylvania , launched a online registry <http://postpolio.conemaugh.org>
of polio survivors to promote research.
If you have not registered with them, and would be willing to be a part of this research (which is minimal & may help other polio survivors), please click on the link above. Thank you.
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#99194 - 12/16/07 12:24 AM
Re: Post Polio
[Re: ladyheart]
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MerryA
Member
Registered: 01/10/04
Posts: 10887
Loc: Tennessee
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I need to get a sleep apnea test too - but I have so much trouble sleeping, I am afraid I will get there and lay awake all night. 
_________________________
"I was curious. Since I'm not a cat, that's not dangerous."
- Greg House
76.22.172.94
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#129141 - 07/31/08 07:48 PM
Re: Post Polio
[Re: MerryA]
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bren61
Junior Member
Registered: 07/31/08
Posts: 1
Loc: MS
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I have just found this site by reading The Polio Paradox, by Dr. Bruno.
I had polio at age 3 was diagnosed with PPS in 1991 after experiencing new weakness and fatigue.
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#140326 - 11/17/08 03:00 PM
Re: Post Polio
[Re: bren61]
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Zella
Junior Member
Registered: 06/12/08
Posts: 7
Loc: NJ
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I got Polio in 1958 at age 1. I'm a bit surprised by how many PPS folks there are out there that got Polio after the mid '50s. I spent most of my life thinking that I was the youngest! I walk with a KAFO and forearm crutches. I use a scooter outside and have recently had to start using a chair in the house to start saving my shoulders. Using the chair has really taken a toll on the rest of my body. I got deconditioned really quickly and now seem to have a harder time just doing normal things. I hate that in order to save my shoulders, I had to lose strength everywhere else.
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#140333 - 11/17/08 07:49 PM
Re: Post Polio
[Re: Zella]
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YosemiteSam
Member
Registered: 05/20/00
Posts: 5386
Loc: No. Calif. (SF Bay Area)
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Welcome aboard, Zella. Seems like we have lotsa PPers here.
_________________________
 Bob
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#140381 - 11/18/08 04:10 PM
Re: Post Polio
[Re: YosemiteSam]
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MerryA
Member
Registered: 01/10/04
Posts: 10887
Loc: Tennessee
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Wow, I had forgotten there were so many PPSers around!
Do you guys know there are more PPSers than SCIers and MSers combined? Makes you wonder why we don't get more press.
_________________________
"I was curious. Since I'm not a cat, that's not dangerous."
- Greg House
76.22.172.94
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#145566 - 02/03/09 09:46 AM
Re: Post Polio
[Re: bren61]
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marylou
Junior Member
Registered: 02/03/09
Posts: 1
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Aren't Dr Bruno's articles great?
They just really hit on all the important points.
I'm new to this board but NOT to PPS and HOW to deal with it.
I was Dx'd with PPS after breaking my leg in 1996.
I found PPS HELP, friends and newsletter to give support with the life changing events thru the Post-polio.org folks. http://www.post-polio.org
Their conference this year--- all about PPS--- is in Warm Springs Ga.
Attending this conference was for me life changing and empowering.
I 've attended 2 of the natioanl ones since my dx and met many people I stay in contact with.
I feel I have been helped immeasurably in dealing with the changes in my life since 1996 by being a part of this group and attending a few national & regional conferences !
The international Post-Polio.org folks back the Murtha Neuro-center too.
butting in from Six-burgh!
marylou
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#145568 - 02/03/09 11:04 AM
Re: Post Polio
[Re: marylou]
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MerryA
Member
Registered: 01/10/04
Posts: 10887
Loc: Tennessee
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I am going to Warm Springs in April for the retreat and conference. I am excited and so hope they can help me with some techniques to deal with the fatigue, pain and over all crap that comes with PPS.
Glad to hear it was beneficial for you Marylou!
_________________________
"I was curious. Since I'm not a cat, that's not dangerous."
- Greg House
76.22.172.94
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