#81788 - 06/14/07 06:42 PM
Re: Post Polio
[Re: strungetta]
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YosemiteSam
Member
Registered: 05/20/00
Posts: 5386
Loc: No. Calif. (SF Bay Area)
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It's be3een quite a while, but RedBaron was PPS (still is). I think Donna stays in touch with him. I miss kidding around with him.
Come back Terry (if my memory serves me).
ßoß
_________________________
 Bob
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#83926 - 07/08/07 07:39 PM
Re: Post Polio
[Re: john55555]
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Sandee3535
Junior Member
Registered: 07/06/07
Posts: 11
Loc: Washington state
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Johnny--did you ever have the polio shots or the sugar cubes? I had non-paralytic polio even after these two treatments--that was in 1956, when I was 10 years old. I appreciate the positive thoughts that many folks have. It just seems to help get through the day.
Sandee3535
thank you for listening
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#83985 - 07/09/07 11:26 AM
Re: Post Polio
[Re: strungetta]
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ladyheart
Member
Registered: 02/24/00
Posts: 3392
Loc: on a pathway, somewhat smooth,...
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Hi rob, been not posting here much recently, but miss chats too, time is limited as well as energy of course.
Hi Barbara, there are several of us PPS'ers hanging around, been a power chair user for over 20+years now, if you want to PM or e-mail me feel free to. I like your refusal to let PPS win thinking too,
Bob, have not heard from Terry aka Red Baron for ages now, should check on him, the group we were in together is not as active anymore since Yahoo closed it's chat rooms. I miss his lively wit for sure.
Sandee, I read your other posts in the other forum, and sent you a PM too,
take care, Donna
take care, Donna
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#83989 - 07/09/07 11:58 AM
Re: Post Polio
[Re: spinner]
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dashing
Member
Registered: 08/31/01
Posts: 6633
Loc: home
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Merry, I'm surprsed at the 62 date. It was rampant in the late 40's and early 50's. I remember getting innoculated and a follow-up sugar cube sometime before 1960. Different dates in different parts (was going to use states) of the country? dash
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#84006 - 07/09/07 02:03 PM
Re: Post Polio
[Re: dashing]
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MerryA
Member
Registered: 01/10/04
Posts: 10887
Loc: Tennessee
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Merry, I'm surprsed at the 62 date. It was rampant in the late 40's and early 50's. I remember getting innoculated and a follow-up sugar cube sometime before 1960. Different dates in different parts (was going to use states) of the country? dash
Yes, I had the vaccine and still caught it - must have been a bad batch. I recently found out that another child in my second grade class caught it - so probably either she gave it to me or I gave it to her. My brother and middle sister were also vaccinated when I was and I am convinced they had non-paralyic polio - we were all three sick the same weekend - same symptoms except mine included paralysis.
The vaccine was developed in 1954 - the year I was born. I was vaccinated with the shot in 1958 or 1959. Then all four of us kids were vaccinated again with the sugar cube in the mid-1960's - my parents were afraid I would catch it again or that the others would since the shot didn't work on me.
_________________________
"I was curious. Since I'm not a cat, that's not dangerous." - Greg House 76.22.172.94
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#84050 - 07/09/07 07:01 PM
Re: Post Polio
[Re: MerryA]
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dashing
Member
Registered: 08/31/01
Posts: 6633
Loc: home
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My sister born in 51 and Aunt caught it the same time two neighbor children did. The other children were paralized. They thought my older sister was very lucky, and was. But, when a teen was diagnosed w/ a back problem they related to the illness. Sorry. Murphy's Law seems to have caught you too. I always felt those born after 54... dash
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#84243 - 07/11/07 03:16 PM
Re: Post Polio
[Re: MerryA]
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john55555
Member
Registered: 03/31/06
Posts: 531
Loc: "'cross the alley from the Ala...
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Here's a tip for fellow PPS'ers. If it hasn't started already, you might start getting neck pain late in the day as those muscles start to go. That's been happening to me over the past few months.
I invested in one of those cheap neck braces you can get at Walgreens. The Velcro / cloth type. Wear that at the computer, reading, etc. for a while during the day. It really improves things. :O)
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#84244 - 07/11/07 03:24 PM
Re: Post Polio
[Re: john55555]
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ladyheart
Member
Registered: 02/24/00
Posts: 3392
Loc: on a pathway, somewhat smooth,...
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Thanks Johnny, for the tip, yeah I too "hit the wall" during the late afternoons too. I have a head rest on my power chair, but it's not comfortable while at the dinner table eating. Hard to explain, but having my head back or in tilt mode isn't all that "functional", more for resting.
Hope that makes sense, take care, Donna
P.S. To dashing Donna, I got polio in August of 1955, being only 16 months, the vaccine which went into use in April of that year, primarily was given to school age kids first not babies.
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#84249 - 07/11/07 04:47 PM
Re: Post Polio
[Re: ladyheart]
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john55555
Member
Registered: 03/31/06
Posts: 531
Loc: "'cross the alley from the Ala...
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It does indeed make sense. The only up side to this..if there is one!..is that it's gradual. Relentless, but we have a "heads up" so to speak. I don't know if that's good or bad, Donna.
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#84277 - 07/12/07 07:28 AM
Re: Post Polio
[Re: john55555]
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MerryA
Member
Registered: 01/10/04
Posts: 10887
Loc: Tennessee
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I have constant neck pain, some days worse than others. Thanks for the tip - it makes perfect sense that it would help because the pain is worse the day after I have spent a long session at the 'puter.
_________________________
"I was curious. Since I'm not a cat, that's not dangerous." - Greg House 76.22.172.94
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#84296 - 07/12/07 09:06 AM
Re: Post Polio
[Re: MerryA]
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john55555
Member
Registered: 03/31/06
Posts: 531
Loc: "'cross the alley from the Ala...
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Other places have them, MerryA..not just Walgreens. They attach with velcro and last forever. Also work well on trips. Be you driver, passenger or strapped to the luggage rack..it works like a charm!
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#85731 - 07/31/07 10:09 PM
Re: Post Polio
[Re: john55555]
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Linda D.
Junior Member
Registered: 06/27/07
Posts: 1
Loc: Displaced Texan Living in Okla...
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Another Polio Survivor here. I caught Polio at the age of 15 months in 1954. After 17 ortho surgeries I was down to one leg brace and crutches (canadian canes.) I had 10-12 "good years" after my fullest recovery. Began to have problems in 1978 and finally diagnosed, by Dr Carlos Valbona, in 1989. I was immediately but into a mobility aid and for the past 10 years I have been in a Rehab Power Chair.
Linda
_________________________
Linda
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#85803 - 08/01/07 02:31 PM
Re: Post Polio
[Re: Linda D.]
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Paul I
Member
Registered: 02/24/00
Posts: 7913
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This is an interesting thread. We SCI perhaps have little understanding of the progression that post Polio folks go through. I was in college with a number of post polio folks back in the 60's and it makes me wonder how they are doing. PI
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"...only the shadow knows"
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#85820 - 08/01/07 03:13 PM
Re: Post Polio
[Re: Paul I]
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YosemiteSam
Member
Registered: 05/20/00
Posts: 5386
Loc: No. Calif. (SF Bay Area)
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Welcome aboard, Linda. I have MS, another progressive disease.
ßoß
_________________________
 Bob
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#85826 - 08/01/07 04:06 PM
Re: Post Polio
[Re: YosemiteSam]
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paradocs
Member
Registered: 11/20/04
Posts: 2323
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Paul I:
Where were you in college? In the 60's, I was in college in Houston, Texas. If you weren't, then I am not one of the post polios you remember from then.
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