#14261 - 04/03/06 03:44 PM
Post Polio
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john55555
Member
Registered: 03/31/06
Posts: 531
Loc: "'cross the alley from the Ala...
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I read a post here..New Mobility..where a person wondered how many people on these boards have Post Polio Syndrome (PPS).
How 'bout a head count?
I got Polio in '49. Started feeling the effects of PPS about 20 years ago. Have gone from a Corvette to a wheelchair (power), and attempting to remain positive.
Anyone else?
Take Care,
Johnny
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#14262 - 04/03/06 03:53 PM
Re: Post Polio
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MerryA
Member
Registered: 01/10/04
Posts: 10887
Loc: Tennessee
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Welcome Johnny.
PPS here.
Polio in '62. PPS started in the mid-80's. Have gone from walking with braces and crutches to a manual chair and now a power chair.
Merry
_________________________
"I was curious. Since I'm not a cat, that's not dangerous."
- Greg House
76.22.172.94
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#14263 - 04/03/06 05:11 PM
Re: Post Polio
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ladyheart
Member
Registered: 02/24/00
Posts: 3392
Loc: on a pathway, somewhat smooth,...
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Welcome Johnny,
Polio orginally got me in 1955 at 16mos old, was in a iron lung for about 8months originally and again when I was 12 with my first bout of pneumonia.
PPS officially Rx'd in 1980-81.
Did the brace and crutches too till about age 13, Manual chair till age 27, Power chair user since 1981. Bi-pap machine at night since 2001, and last year or so during the day for "rest" periods.
Hi Merry!
take care,
Donna
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#14264 - 04/03/06 05:49 PM
Re: Post Polio
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john55555
Member
Registered: 03/31/06
Posts: 531
Loc: "'cross the alley from the Ala...
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Hello, MerryA and Ladyheart. Well, 3 is a group as far as I'm concerned!
It's a strange trip isn't it? I've worn a brace (right leg) since I left Newington Children's Hospital in '49. That's near Hartford, Conn. Now, in addition to the brace, I use crutches on occasion (out and about)..but mostly a power chair at home.
I'm going to cut this short for now ..see you later!
Take Care, Johnny
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#14265 - 04/03/06 10:48 PM
Re: Post Polio
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BillD
Member
Registered: 05/29/03
Posts: 45
Loc: Southern California
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Polio in early 1956 was about 3 months old. Had surgery for my ankle so it would not turn out. Have had a leg brace since then. Walked for years and 8 years ago got a 3 wheel electric scooter. PPS was diagnosed 8 years ago when I was getting tired while just doing regular things.
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#14266 - 04/04/06 05:52 AM
Re: Post Polio
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john55555
Member
Registered: 03/31/06
Posts: 531
Loc: "'cross the alley from the Ala...
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Hi, Bill D...Thanks for the post!
Man, I hear you talking! Just placing all my weight on the left (good!) leg to put Molecule's (my cat) food dish down feels like I've run a marathon..or what I imagine that would feel like!  )
Take Care,
Johnny / Polio '49
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#14267 - 04/04/06 11:33 AM
Re: Post Polio
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ladyheart
Member
Registered: 02/24/00
Posts: 3392
Loc: on a pathway, somewhat smooth,...
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Hi Johnny,
Just wondered have you read Dr. Richard Bruno,'s book about polio and PPS. Before I got it I thought I knew all about polio and it's initial effects and PPS ,but after reading it, so much fell into place. I felt "validated" in a sense that what I was feeling for so long was not "all in your head" as I had been told.
Anyway I have some online links for PPS info and support groups if you want to read more, e-mail me or send a PM if you want.
Btw, there are several more male NM PPS'ers here too, but I will let them identify themselves if they want too, c'mon fellas you know that I know who you are, lol. Just kidding, a bit of humor does help once in awhile,
take care,
Donna
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#14268 - 04/04/06 11:58 AM
Re: Post Polio
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john55555
Member
Registered: 03/31/06
Posts: 531
Loc: "'cross the alley from the Ala...
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Hi, Donna
If you're referring to "Polio Paradox", yes indeed I have! It is outstanding. I love his vivid description of the virus entering the body.
I would highly recommend "A Nearly Normal Life" by Mees. This is easily the best first person Polio book I've ever read. As one "Amazon" reviewer stated "5 stars just doesn't do it justice."
We all have a book in us. Mees (Charles I believe is his first name) put his on paper and takes you through his experience so well that you just can't put it down!
Like a rib eye ought to be: really well done!
Take Care,
Johnny
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#14269 - 04/04/06 07:56 PM
Re: Post Polio
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ladyheart
Member
Registered: 02/24/00
Posts: 3392
Loc: on a pathway, somewhat smooth,...
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Yes Johnny, that was the one I was read, and he has another one that is an E-book, about Stress and PPS, "How to Stop being vampire bait" I would recommend it as well.
The one by Mees I have not read, but will check it out at Amazon soon. And I totally agree that we all have a book in us, waiting to be written, in fact I have been doing some research slowly over the years, collecting stuff from my early polio days and one day would like to put it together in some way that would be of interest or help to others.
Good night for now,
take care,
Donna
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#81071 - 06/06/07 08:18 AM
Re: Post Polio
[Re: john55555]
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spinner
Member
Registered: 09/30/01
Posts: 35
Loc: Silverton Oregon
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Washington DC class of '52. It was all the rage, one out of three kids in our neighborhood got it. Used a lung, double leg braces, crutches, ended up back in a chair part time in '85 full time the last 10 years.
It could be worse,
Spinner
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#81158 - 06/06/07 04:50 PM
Re: Post Polio
[Re: spinner]
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paradocs
Member
Registered: 11/20/04
Posts: 2323
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Polio '54. Iron lung for two months, rocking bed for another two. Was never able to manage walking with braces and crutches so I have used a manual chair for over 50 years. I have never found a power chair I could transfer BOTH to and from. Some I can manage one but not the other, others I can manage neither. Since 2000 I have had to use a respirator when lying down.
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#81163 - 06/06/07 05:05 PM
Re: Post Polio
[Re: paradocs]
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sodapop
Member
Registered: 02/18/05
Posts: 9486
Loc: new york
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so many ppl PEOPLE gone...wtf to john555? he was nice.
_________________________
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#81173 - 06/06/07 05:51 PM
Re: Post Polio
[Re: sodapop]
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ladyheart
Member
Registered: 02/24/00
Posts: 3392
Loc: on a pathway, somewhat smooth,...
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Hi Spinner and paradocs, and hi to you too rob, have not been posting here for awhile but check in now and again, this thread caught my eye today.
And yeah I have wondered about johnny too, hope he's okay and just having further PPS issues,
take care,
Donna
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#81180 - 06/06/07 06:32 PM
Re: Post Polio
[Re: ladyheart]
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sodapop
Member
Registered: 02/18/05
Posts: 9486
Loc: new york
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i miss chatting w/you, donna!
_________________________
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#81750 - 06/14/07 07:48 AM
Re: Post Polio
[Re: john55555]
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strungetta
Junior Member
Registered: 06/14/07
Posts: 1
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I'm new here. It's nice to meet people who understand what I feel. I got polio in 1957. Wore braces until age 8. Then always walked slower and a little crooked. Chemotheraphy and radiation for cancer in 1991 brought on PPS. Then started to need a cane, then crutches, now a manual chair, sometimes a power chair and mostly my scooter to get out and enjoy life. I refuse to let PPS win.
Barbara
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