As managing editor of New Mobility and social media manager, it’s a big part of my job to track who’s who and what’s next in the disability community. Also, to know what is working for you, and what you’d like to see covered or improved in New Mobility. How do we look? Are our stories helpful and meaningful? What would you like to see us cover next? I’d love to hear from you. My email is JByzek@Unitedspinal.org. I live with my family in Harrisburg, Pa., mere blocks away from the Susquehanna River, on which I love to fish, kayak, canoe or just sit on a rock and watch the sun go down. I was diagnosed with multiple sclerosis in 1998, after years of trekking from one doctor after another to figure out what was going on with my body. But I’ve been involved in our community professionally since 1990, when I first got a job answering phones at the center for independent living in Pittsburgh.
Six Phrases You Hear Only at the Paralympics: “I wish I didn’t have legs” …
NEW MOBILITY asked Kleo King, senior vice president of Accessibility Services and Able to Travel for United Spinal Association, to share her experience on the Air Carrier Access Act, the Transportation Security Administration, and airline accessibility.
Multiple sclerosis is a bitchy disease, something filmmaker Jason DaSilva and I both understand intimately. It hits like a tsunami, makes a devastating mess, takes what it wants and doesn’t usually give anything good in return. In my own experience, it feels like I am slowly being whittled down. A little off my eyes, my […]
How Others See Us: Our Friend, Our Mom, Our Love
My Gimpy Life is back! My Gimpy Life is back! OMG, I’m so excited, Teal Sherer‘s My Gimpy Life is back! There will be a new episode released via YouTube every Monday at 4pm Pacific time!! Yayyyy!!! In this episode, our heroine and her weird and damply amusing roommate realize they’ve got to get real […]
“I Got 99 Problems and Palsy is Just One,” “The Gorilla in my House” …
My colleague Bob Vogel sent me a disturbing article about how some opponents to Texas attorney general and gubernatorial candidate Greg Abbott are questioning whether the man really is a wheelchair-using paraplegic. They’re calling themselves “Wheelchair Truthers,” possibly as a counterbalance to the “Birthers” who refuse to believe President Obama is an American no matter […]
We’ve seen the stories about wheelchair users being mistreated by TSA agents or forced to crawl across the tarmac. Is this typical, or are these incidents few and far between? Are some airlines better than others for wheelchair users? And how often is equipment damaged or destroyed by airlines? Please take our short survey on […]
The concept of a curb cut is elegant in its simplicity — it’s just a small ramp inserted at street corners or other logical places to allow wheelchair users, parents with strollers and other people who use wheels the ability to cross the street. Yet, for some reason, sometimes this simple elegant concept gets bungled. […]
New York Times’ Linda Yablonsky recently wrote this about the artist Chuck Close: “Close, who is 73, has been bound to a motorized wheelchair since 1988, when a spinal artery collapse caused near-total paralysis. That didn’t dampen his enthusiasm for either making art or collecting it, and other things as well …” Wheelchair bound since […]